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A helping hand for Hori

  • Hori's chemotherapy timetable - first 40 days

      4 September 2021

    This update is to inform you of Hori's chemotherapy timetable for the month ahead.

    We've all become familiar with the term chemotherapy because Cancer has permeated society for decades. It is a health issue from which we are never too far removed.

    Chemotherapy is the use of drugs to destroy cancer cells. It usually works by keeping the cancer cells from growing, dividing, and making more cells. Because cancer cells usually grow and divide faster than normal cells, chemotherapy has more of an effect on cancer cells. However, the drugs used for chemotherapy are powerful, and they can still cause damage to healthy cells. This damage causes the side effects that are linked with chemotherapy (fatigue, pain, mouth and throat sores, diarrhea, nausea and vomiting, constipation, blood disorders).

    Hori is experiencing most of these side effects and two days ago was told that he has mucositis - damage to the cells inside the mouth and throat, which causes painful sores in these areas. So in addition to the chemotherapy drugs, he is on morphine for pain management.

    The drugs that are used as part of the chemotherapy treatment are -

    Dexrazoxane - to protect the heart

    Doxorubicin - slows or stops the growth of cancer cells by blocking an enzyme called topo isomerase 2 (which cancer cells need to divide and grow)

    Cisplatin - used to treat a number of different cancers, usually in combination with other chemotherapy drugs

    Cotrimoxazole - an antibiotic used to treat certain bacterial infections

    Methotrexate - helps stop making and repairing DNA, which cancer cells need to do to grow and multiply

    Pegfilgrastim - used to stimulate the growth of "healthy" white blood cells in bone marrow, once chemotherapy is given. White blood cells help the body fight infection.

    CHEMOTHERAPY TIMETABLE

    25 Aug Day 1 (Dexrazoxane, Doxorubicin, Cisplatin)

    26 Aug Day 2 (Dexrazoxane, Doxorubicin, Cisplatin)

    15 Sep Day 22 (Methotrexate chemo - 4 hours)

    22 Sep Day 29 (Methotrexate chemo - 4 hours)

    29 Sep Day 36 (Dexrazoxane, Doxorubicin, Cisplatin)

    30 Sep Day 37 (Dexrazoxane, Doxorubicin, Cisplatin)

    Antibiotics (Cotrimoxazole) every Saturday and Sunday, morning and evening

    Blood tests - 8th, 15th, 21st, 28th, 27th September

    This is just the start of Hori's fight for life. He will have to go through this for at least the next three months. No parent wants this for their child.

    Please lock in these dates and spare a thought for what Hori is going through. If you want to do something extra for him, you can send gifts to Hori Bellass at Starship Hospital, 2 Park Road, Grafton, Auckland 1023 or mail to Starship Children's Health, Private Bag 92024, Auckland 1142.

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  • First round of chemo completed

      3 September 2021

    Hori had his first round of chemotherapy this week, with his Mum by his side. This is a trying time for them both. It's hard for his Mum to sit there watching her boy go through so much anguish and pain, feeling so helpless as she watches him suffer.

    They had the option of leaving the hospital for a night and chose to go to the comfort and familiar surroundings of their home. They did not last the night and hastily returned to the Starship ER. Hori had reacted to the chemo.

    The Doctors were worried and decided to do a lumbar puncture to collect cerebrospinal fluid for a definitive diagnosis for meningitis. This was of huge concern and an added worry for everyone. Fortunately, the tests came back negative, and our Hori is clear of meningitis.

    Hori is physically, spiritually, and emotionally weak at this time. His Mum is reading him all the words of encouragement, the prayers, and the blessings that everyone is sending through.

    Lisa, Hori, AJ, Tei-ina, Limitri and Justus are so very grateful to everyone who has shown love, compassion and kindness at this time. The support shown to date has offered a lot of relief during a very difficult time.

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    • 03/09/2021 by Alastair

      As a solo Dad for 9 years I feel your pain, my Daughter offer our support and prayers for Hori - Alastair