Back to page

Alicia's Fight with Burkitt Leukemia

  • Update for 07/03/2014

      7 March 2014

    Please contact me Nina if you would like to donate any furniture, bedding etc. ninaglen@kinect.co.nz 021-2095128 Thank you

      0 comments  |  Login to leave a comment

  • Update for 06/03/2014

      6 March 2014

    Been a while since I have done an update. Alicia had another round of Chemo on the 26th of Feb, the doctors told Trent and Vicky if she is not going to get high Temps she is allowed to come home for a few days. On sunday the 2nd of march Alicia was allowed to come home,yayyyeee. It was very hard for her to travel from Auckland to Tauranga, being so skinny and fragile. But she made it, cause she didn't want to miss out on seeing her Brothers and Sisters. Since being home she has been vomiting a lot, so yesterday 5/3/14 Vicky and Trent went to Tga hospital. She has been taking of her Feeds for now, and she will just get fluids for a bit. Still a big journey ahead, but she is a BIG Fighter and she will kick this nasty illness. On the 28th march the Greerton Rsa will put on a quiz night, all donations will go to Alicia and fam. Teams of 6 $10pp, if intrested ring me 021 2095128. Thank you all for your continues support. Nina

      0 comments  |  Login to leave a comment

  • Update for 23/02/2014

      23 February 2014

    What a week it has been, received some lovely phone calls from all over NZ to wish Alicia well. We have had donations from all over the world, Japan,USA,Australia,Spain. Am so blown away with the response, and so greatfull to see we are getting this Lovely Fam back on their feet. Here's a little story Vicky wrote Yesterday. What a most excellent day! I am so over wehlmed! We not only had Lili out to R.M House but we got her a princess arm chair and Dora mat so she sat in her nice soft chair and ATE!!! YES ATE!!!! She munched down some popcorn chicken, potatoe and gravy and chips. And had a drink of 7up. Tomorrow she wants to try a cheese burger happy meal!!!!! So grateful for today. I got to lay on the bed and cuddle my girl properly for the first time in a month. Had a few tears of joy. Today was most definitely a good day my friends xxxxxxxx Great News, she is kicking this monsters Butt. Thank you Nina

      0 comments  |  Login to leave a comment

  • Update for 19/02/2014

      19 February 2014

    Blown away with the donations and phone calls. We have got some great fundraising events coming up, so stay tuned keep checking this page for updates. Thank you all for your great support. Nina

      0 comments  |  Login to leave a comment

  • Update for 18/02/2014

      18 February 2014

    Alicia had a blockage in her bowels last week, so they stopped feeding her. she has had no food for 5 days. But yesterday they put her on small 5ml amounts every hour. And today she is getting 10 ml an hour. She has perked up a bit again. And also a BIG article in the BOP times today, made the front page. All about Alicia and her fam. Thank you all for your great support. Nina

      0 comments  |  Login to leave a comment

  • Update for 14/02/2014

      14 February 2014

    Haven't done a update for few days. Alicia has had a rough week, here a little update Vicky wrote on Alicia's facebook page. Well all is calm now, but she screamed the place down on the way to theatre.Get me outta her, get me outta here!!! She had to have meds to calm her.They are now chartered before theatre.This morning was the last day of chemo for this round.And the dentist pulled out the left over bone fragments and washed her mouth. She's now comfortable with continuous morphine. Thank you all for your support. Nina

      0 comments  |  Login to leave a comment

  • Update for 09/02/2014

      9 February 2014

    This is what Vicky wrote on the Facebook page this morning, Alicia you are a Trooper. All going well when Lili's methatrexate levels come down we can go to Ronald McDonald House for a few days and come back to clinics for treatment. Keep prayers, positive thoughts and love flowing everyone! Your support along with treatment and Lili's fighting spirit will get her through xox

      0 comments  |  Login to leave a comment

  • Update for 09/02/2014

      9 February 2014

    If you can help or know someone who can help, please let me know. We are in need of furniture beds linen etc. The Fam Steenson had to leave everything behind in their rental. They found out a few weeks ago that their house was contaminated with the Class A drug methamphetamine. They lost their house but also most of their belongings. Starting fresh in a new house soon, we have to find something to put in it. Furnishing has to be clean due to Alicia's immune system. Please Contact me if you can help. Nina 021-2095128 or 07-5700332 Thank you all for your Support.

      0 comments  |  Login to leave a comment

  • Update for 09/02/2014

      9 February 2014

    Thank you all for the Great Support, I have received some great help from the Community. It has been a very humbling experience, and am so greatfull to each and everyone. Nina Harland

      0 comments  |  Login to leave a comment

  • Update for 08/02/2014

      8 February 2014

    ALICIA IS OUT OF ISOLATION!!!!!!!!! And Lumbar Puncture times set for Monday and Thursday, AND we will be able to go back to Ronald McDonald House for a couple of days between treatments!!!! Way to go our gorgeous warrior princess xo

      0 comments  |  Login to leave a comment

  • Update for 08/02/2014

      8 February 2014

    We had an article in de www.sunlive.co.nz newspaper yesterday about Alicia's fight with Leukemia. She is a fighter this little girl, yesterday was round 2 of chemo.And mum Vicky shaved all her hair of to support her beautifull girl. Check picture of Vicky and Alicia. Thank you everyone for the great support, this fam is very humbled and very greatfull. Nina x

      0 comments  |  Login to leave a comment

  • Update for 05/02/2014

      5 February 2014

    Also check Alicia's facebook page, Vicky does a lot of updates on that. Thank you all for your great Support. This is the name of the facebook page........ Our little Liliboo, Alicia-Kade Victoria xx

      0 comments  |  Login to leave a comment

  • Update for 04/02/2014

      4 February 2014

    Alicia is off the morphine and getting ready for her next round of chemo.

      0 comments  |  Login to leave a comment

  • Update for 03/02/2014

      3 February 2014

    Lili's obs and temp are perfect so all going well next chemo will start Wednesday or Thursday, and the damned monster will get a heck of a fright because Lili's going to kick it in the butt! She has lost a lot of her hair but at least that means her treatment is working! Thank you everyone for your on going love and support xoxo

      0 comments  |  Login to leave a comment

  • Update for 31/01/2014

      31 January 2014

    Alicia will be starting on her next Chemo soon. Hang in there Princess.x

      0 comments  |  Login to leave a comment

  • Update for 29/01/2014

      29 January 2014

    An Update on Alicia from her mum Vicky. Well where to start, ummm.... Lili has had her hickman line removed on Sunday as they identified the bug to be E Coli in the line, so she went under for that. She had a luer added to her arm and has been receiving her medication through there. She has started feeds through her nasalgastric tube due to being unable to eat, so we will have to learn how to administer that as well as meds. She has had a echocariogram today of her heart, all clear thank god! She has had an ultrasound of her abdomine no results back yet on that. She had another luer put in and her beautiful blue eyes stared into mine a single tear ran down her precious face. She is sooo brave. Bloods were taken at the same time to see why she still has a temp. She is on a morphine pump which was just increased. And her hair is starting to fall out, now it feels like our little girl has cancer. But we are going to beat this damned monster with all our might. Our little Liliboo, Alicia-Kade Victoria xx is a bloody true blue kiwi legend.

      0 comments  |  Login to leave a comment

  • Update for 27/01/2014

      27 January 2014

    Alicia had a rough day today. She's getting a morphine pump put in soon to keep on top of her excruciating pain from the mucositis. And now she has a bug in her line so it on three different antibiotics until they identify what bug it is. So wee Alicia's fighting a good fight against the damn monster and it's friends xxxx

      0 comments  |  Login to leave a comment

  • Update for 26/01/2014

      26 January 2014

    Alicia is in extreme pain today, Keep fighting beautifull girl.

      0 comments  |  Login to leave a comment