Amazing Grace needs Our help to make memories.

In 2019 Graces Big Sister Anita unfortunately passed away after a very courageous battle with a gene mutation.

In 2021 Sweet Wee Grace was born and her amazing Parents (mum Lisa) and Big Brother Cody (9) finally had their Amazing Grace. She was the breath of fresh air that this wonderful family so desperately needed… Until the inevitable happened 2022 they got the results of Graces genetic testing came back and she had the same Gene mutation as Anita. ( mutations in the gene of RARS2, PCH6 )

Unfortunately Graces health is declining unbelievably quickly she recently underwent surgery just before Christmas 2023 to get a permanent feeding tube placed. She is requiring around the clock care.

We are hoping to raise funds for this Moana loving girl to go on the trip of her dreams and let them sail around on the Disney Cruise in December 2024. However whatever is raised will be used on creating lasting memories for the Family.

Any help and support in helping them create lasting memories is greatly appreciated. If you can offer something other than financial support please email

Chevonne.peterson@hotmail.co.uk and subject it “creating memories for Grace”

Please see our previous Givealittle page here: https://givealittle.co.nz/cause/family-struck-twice-with-extremely-rare-fatal