Time for an update
25 May 2015Hi to all our supporters. I thought i had better update what is happening this week as it is going to be really busy starting from tomorrow. But before i do carry on, i would like to thank you all for your awesome donations and support in sharing Ariana story and raising the awareness of this horrible illness.
So tomorrow we have a doctors appointment to see if they will take Ariana back into hospital where she needs to be weaned off her medications. Hopefully if we can get her off or cut back some of these meds she will be able to wake up a bit more. We have had problems with an increase of secretions GRRRRR and thats a big GRRRR because they haven't listened to me over the last 8 months. Anyway long story short... These last two years of teaching her to swallow have just be wasted. They are going to change her Trachy, which in turn will stop her from coughing so much so that when they do decuff her she will have enough energy to learn to swallow again. Fingers crossed we get some good news, if not im going to be one unhappy mama!!