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Ashleigh Needs a New Jaw

Cause page created in the Health category by Ashleigh Fenn


$85,301 of $60,000 goal
Given by 1156 generous donors in around 5 months
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I am medically requiring a bilateral jaw joint replacement. This is to ease pain and improve overall function to get my life back.

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  Bay of Plenty

Hello there,

My name is Ashleigh, I'm 21 years old and require a double jaw joint replacement. I have constant pain and an inability to eat a proper diet due to pain and restrictions in my jaw opening and movement. This has been going on since I was 16. I have had many procedures and surgeries in the attempt to fix my jaw problems for good. However, the success these surgeries brought were only temporary, lasting a few months at most. This has interfered with my full-time job, and my Nursing degree that I am struggling to fight through the pain to complete. And now am completely tube fed due to pain and restriction. And this comes with its own set of problems. Due to this, i am in and out of hospital regularly due to trouble controlling pain, malnutrition and having seizures.

My weight keeps dropping whilst we are trying to find the money to pay for this surgery, as it is classed as a dental procedure and a specialty maxillofacial procedure. With having had a naso-gatric tube, a naso-jejunal tube, and now a surgically placed jejunostomy tube.

My last X-ray had shown some degeneration in one of my condyles, adding to my discomfort and restriction. Showing that the joints have started to flatten and change shape, with bits of calcification. I have a 10mm opening in my mouth. And it has remained like this for over a year.

This is the last step in the hope of batting my condition and pain. Unfortunately the DHBs for my area only fund two of these surgeries per year, which has left us with no other choice than to find the money for the surgery ourselves. We are going back down to Wellington at the end of the month to discuss surgery plans and dates with my specialist.

Please don't feel obligated to donate, we understand that like us, money is tight for many people. And we don't by any means really want to take other people's money for the surgery. But we would appreciate you taking the minute in reading over the content on Ashleigh's TMJD Journey and Chronically_Ashleigh on facebook or chronically_ashleigh on instagram to help get an understanding of what's going on in my day to day life. I try my best to keep these pages updated, but can be difficult as it depends on my health each and every day. Thank you heaps ❤

I just want my life back. I dont even remember what its like to enjoy every day that passes, and to be pain free. And i want to become a Registered Nurse more than anything in the world. But my current health limits that! This also includes full time work. Thank you for taking the time to read this. Thank you so much from the bottom of my heart!

Previous Givealittle page: https://givealittle.co.nz/cause/ashleigh-needs-a-new-jaw

Use of funds

Funds will be used to pay for my bilateral jaw joint replacement.

Previous Givealittle page: https://givealittle.co.nz/cause/ashleigh-needs-a-new-jaw

Other page links


Latest update

Finally got my surgery date!  27 November 2020

Posted by: Ashleigh Fenn

Hi there everyone.

I wanted to thank you all once again, for the outstanding amount of donations we have received for my surgery. Due to the generosity i have received, i was able to pay the $30000 deposit for the joints last Friday.

Today i received a phone call, informing me of the probable surgery date next year. I have been booked in for the 11th of February 2021. It seems so far away. But i need to keep reminding myself, that it is only 2 months away!

This week i had to have a Endoscopy and Colonoscopy. However, the sedation didn't work, and they had to stop mid Colonoscopy. So i have been told that they need to repeat it under general anaesthetic.

We are trying to find the cause for these abdominal symptoms that i am having. This is causing me to struggle to have my tube feeds and fluid via tube or orally. So fingers crossed we get some answers soon.

I have started medication for my epilepsy, and we are still in the process of discerning what kind of seizures i am having, as they have the tendancy to present differently each time. The medication so far, isn't helping very much. And i am still having seizures regularly.

On Wednesday for my procedures, i was weighed. and have lost 4kgs in 2 weeks. And it is slowly on the decline again. This is due to the inability to eat without facial pain, eat without vomiting, or eat without intestinal pain and bloating when using my feeding tube. I am trying my best to stay on top of my fluids due to it being hotter, and being at risk of dehydration.

So far, i am coping the best that i can, considering. And at the moment am stressing about being well enough to finish my nursing degree. But have been given some options by the nursing school.

Thanks heaps everyone. I hope you all have a good weekend. I will update you when i have more news to tell!

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Latest donations

Gabriel
Gabriel on 24 Dec 2020
All the best & have a lovely Christmas
$50
Stephen
Stephen on 17 Dec 2020
Private
Peter
Peter on 02 Nov 2020
Hi Ashleigh, I really hope you get better. you remind me of my daughter. I wish you well, God Bless You.
$50
Guest Donor
Guest Donor on 01 Nov 2020
Private
Kathleen
Kathleen on 30 Oct 2020
Hope surgery goes well xx
Private

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Created by, and paying to a verified bank account of, Ashleigh Fenn

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This page was created on 6 Sep 2020 and closes on 7 Mar 2021.
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