Our Shining Star
6 February 2022Barnaby, our absolute shining star. Since our last update we have gone through a lot. We had a midway on protocol MRI that showed a new lesion on his brain. While at first this was absolutely terrifying, I have been busy gaining second opinions, and other medical professionals in Australasia have done the same. And we now look to be in a better place! Some arent convinced it was Cancer and many agree it looked too odd to be metastases. But as it was in a dodgy spot for surgery, it wasn't worth the risk of paralysis to find out.
End of protocol scans have told us that whatever it is, is stable! We have had a stable MRI, a negative lumbar puncture and a clear PET scan! Yay! This puts us in a great spot at the moment and we are cleared to start radiation in coming weeks. We were attempting to get overseas for Proton and are still waiting on the final word for Govt. Funding for this but chances are we will be doing Photon in New Zealand. The Delta variant of Covid is much easier to avoid on our own doorstep and its a bit scary for what that could do to him if he were to catch it at the airport or in the US.
Barnaby is doing amazingly at home, he has been learning how to walk again, absolutely loves playing with his Marble runs and is obsessed with Crash Bandicoot at the moment 😅 he is a very happy wee man and we are beyond thrilled that he is doing so well.
We LOVE you Boogie! ❤️❤️❤️
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Good to hear you have had some positive news with Barnaby and he is doing well Zoe. I will pray that when he starts the radiation it will go well. Take care. xxx