No evidence of disease27 June 2022
And just like that, we can breathe a tiny bit more.
Barnaby had his first official MRI scan out of treatment last week. And today we had the greatest news confirmed, no evidence of disease.
He had his last round of Chemo just after Christmas and we finished radiation 9 weeks ago. We made a decision recently to not use any further Chemo, those closest to us may know that maintenance Chemo was something we pushed hard for initially, but in reality the evidence isn't there that it would do any more 'good' which actually means the toxicity of it could potentially only do harm, potentially a lot of harm. We have started a different journey, and we have faith that Barnaby sits in the best prognostic category to continue to beat this, so we are focussing on healing his body. The treatment he has had to have to get this far... It is a lot.
This kid is incredible, the kind of incredible that takes my breath away. He loves his nurses, he loves his people, he just loves loving. And that brilliant and beautiful nature just sums him up. Cancer can f right off because even in some of the darkest days, it never took your spirit Boog.
Barnaby we are endlessly proud of you.
I have learnt a lot about Cancer through our journey, one thing that sticks with me currently is that when it is invisible and you don't know its there, or you can't tell someone is fighting a battle, then you just don't know. Remember that, remember that you don't always know the pain some people are living with on the inside. Barnaby's hair has regrown and he doesn't have a central line... The obvious signs are fading but his story remains. And it is a big one.
Our journey doesn't end here, Cancer will be a part of our lives but it won't ever take us over. And while we kick it to the curb today, we have many scans ahead over the next 5 years to make sure it stays down.
My heart goes out to all of you fighting this battle for you, or for your loved ones.
We will be right here attempting to make some sense of wtf just happened this last year and most importantly, loving every day along with Barnaby and Ziggy 💚
And on that note we will take down this page and we sincerely hope to never need Give a Little again. But to those of you who have helped us, please know that your support has helped us through immensely stressful times. And that is so important.