Baxter has fought battles for you, now he has one of his own and needs your help!
Otago
Many people know Mark Baxter ( or just 'Baxter' to his friends). He has been a vociferous champion of the less well off for most of his life. Most recently he has devoted time to supporting cancer fundraisers, particularly men's prostate cancer. Last year for example he took part in the TranzAlpine Scooter Safari, riding a ridiculously small scooter across the Southern Alps.
He had looked forward to joining this year's Scooter Safari, and spent months fundraising, but had to be persuaded to postpone doing this due to skin tumours he had started developing in a few part of his body - including the bum he would have been sitting on for ten hours. Being Baxter, he has called this a 'postponement' and still fully intends to undertake the ride, by himself if need be.
Over the past months the tumours kept growing and spreading, causing a huge amount of pain. His GP found getting a diagnosis very challenging due to the lack of specialist services here in the South, most particularly a dermatologist. In fact it was only when the lesions were 'bad' enough that a dermatologist on a chat group made the first move that resulted in skin samples being taken and tested for specific possibilities.
From this - to Baxter's immense shock - it was revealed he had a rare T-cell lymphoma blood cancer (multisite (T3) PCALCL Lymphoma).
At the time of writing, he is in the cancer ward managing infection and pain, as is in need of some support.
AskOtago is Fiona's work whānau, we wanted to set this up for Baxter and Fiona to support them as they navigate through this difficult time.
Our current need from a Give a Little page is to manage the day-to-day costs around supporting Baxter, and unfunded medical equipment.
If his current treatment doesn't work, the next step and most recommended treatment option is a drug unfunded by Pharmac - $70,000. A page update will be posted, once the treatment has been confirmed.
An update from Baxter and Fiona! 12 October 2026
Baxter has now received the second dose of the now partially-funded treatment he needs. Due to the potential for side effects, the doses are spread two weeks apart and it is always a nervous day. Will he suffer the tingling that may lead to permanent nerve damage? How much nausea? Are there signs of hair loss?
So far he has reported nausea and tingling but so far so good – the tingling has stopped.
We are all cautiously hopeful that the tumours are not getting any worse and may hopefully even start improving.
While having a stoma and a catheter are not for everyone, for Baxter it has been a game changer, enabling him to be able to focus on his wellbeing and not on constant pain.
You’ll likely have seen that he has even started campaigning, so others do not have to go what he went through in taking so long to get a diagnosis. Health New Zealand do say they are reintroducing a face-to-face dermatology clinic in Dunedin, but they have said this before.
You have all done so much already, but if you have a moment consider signing Baxter’s parliamentary petition at https://petitions.parliament.nz/02bdeb53-7678-47d6-458b-08df1dcea7c0?lang=en and if you come across people in your life who have suffered without a face-to-face specialist service, encourage them to speak out. Baxter only has one (very loud!) voice – the more people who share their stories the more we will be listened to.
Thank you again for the support and kindness.
Baxter and Fiona
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