Blake's CCHS journey #BlakeIsHulk

Baby Blake is just over 5 months old and has spent over 10 weeks in starship hospital. With a rare lifelong condition called CCHS. Congenital Central Hypoventilation Syndrome. (Stops breathing, holds his breath.)

Blake is Hooked up to breathing machines and needs monitoring 24/7. And now needs to have his 1st surgery, A tracheostomy where a full time breathing pipe will be placed in his throat for air machines to be hooked up.

We want to get Blake and his mumma home to the rest of the family instead of a life in starship hospital missing his siblings. Blake and his super mum Grace will have on going trips to starship every 3 months for regular check ups. Which is costly to say the least when your 4 hours away from home. So all funds raised go towards all the little things that add up to making the journey home and home life less stressful for Blake and his loved ones. Where he can listen to Stan Walker as loud as he wants without upsetting the rest of the Hospital because that's the magic music that helps Blake settle down fast. #blakeishulk #blakelovesstanwalker