23/09/24
23 September 2024
It’s was Bodhi’s eldest sisters birthday today !
He enjoyed celebrating with her and taking pictures with her new camera !
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Bodhis Journey
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17/09/2024
18 September 2024Bodhi and co moved again over this weekend. To a big house in the country. Finally they are somewhere that feels like home ! Bodhi’s doing well ! And loving the new abode
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05/08/2024
5 August 2024🫶🏻Bodhi tonight
Having a bath with his cows 🤭✨
He’s doing well
Being his cheeky, full of fire wee self 💜
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15/07/24
15 July 2024*shared from Courtney*
HELLO MAINTENANCE!!!
Honestly, I remember dreaming of this day many months ago, felt like it was never going to get there. What a bloody blessed day today is ! So much joy I don't even have words for . Massive milestone for us 🙌🏻
It's crazy this journey has felt like a lifetime but also the last 3 months has felt like a blink !
In 17 months 2 weeks bodhi will have his last chemotherapy! This is the long haul . But it's a much better stage to be in .
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11/07/2024
11 July 2024Special delivery for Bodhi today from Gabbys Starlit hope ✨🫶🏻
Gabby's Starlit HOPE has been a beacon of light from the beginning
Thank you so much for all that you do.
Your truely an angel among us ✨
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10/07/2024
10 July 2024🫶🏻Bodhi update 🫶🏻
✨Sunday bodhi and Mac travel back to star ship for the official start of the new phase !
✨Bodhi’s hair is growing in nice and healthy and full of life
✨Bodhi’s fav foods at the moment-
✨honey on toast
✨Apples
✨Chocolate fingers
✨meal mate biscuits
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Bodhi’s cake
30 June 2024Well deserved, mr bodhi 🫶🏻
Also, the CAKE WAS AMAZING !!! Made Cakes By Peanut ! Highly recommend.
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Day 241
27 June 2024Day 241 on bodhis Battle against Cancer.
Today, he is having another round of chemotherapy vincristine & methotrexate.
Today is his last day of interim maintenance ll phase
He has completed phases 5/6 .
100+++ odd days ago, this day felt like it would never be here , with no light at the end of the tunnel.
As we move into phase 6 - maintenance!!
we are so thankful and filled with joy for him & for us as a family to move to a more normal way of living. 🙌🏻
Bodhi is a trooper ! We are so proud of him ❤️
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17/06/2024
18 June 2024✨UPDATE FROM COURTNEY ✨
Absolute shit show again today . 😥
Mac arrived, and they said bodhi isn't set for surgery today . That he needed to do repeat bloods and surgery would be tomorrow! Mac wasn't impressed, to say the least . Honestly, the communication is terrible!
But a Dr who was pretty cool is also from Taranaki , said he will get him on surgery list for last surgery of the day . And won't bother will repeat bloods .
Then he had his surgery. Mac was still waiting on a phone call over 40 minutes later to say he was out and he could come , no call so he went in to go ask what was going on , turns out they didn't bother calling because they seen bodhis phone and thought that was macs 🤦🏻♀️🤦🏻♀️ poor bodhi was so upset and really frustrated with dad because he wasn't there .
They've ordered his chemo today, so now he has to go to it tomorrow morning before his flight .
That place really annoys me , it's always something, and the communication is always sh*t.
In saying that , bodhi has one more appointment in 2 weeks, then he is set for monthly checks , home oral chemo & 3 monthly starship visits ! How amazing is that !
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04/06/2024
5 June 202420 days away from bodhis last chemo for this phase before he goes into maintenance!
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Bodhi Goodness
31 May 2024A wee bit of bodhi goodness
https://www.facebook.com/share/v/RMYnW4mhqjUfzDix/?mibextid=WC7FNe
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21/05/2024
21 May 2024Child cancer Society sent some groceries to Bodhi’s family today so they can move more money aside for moving costs !
They are moving next week - and trying to get together the money for moving and a bond
How awesome is that
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13/05/24
13 May 2024✨✨✨Shared from Courtney ✨✨✨
195 days ago, this picture was taken , This was the day after we flew up to the starship. He was diagnosed 196 days ago, 30-10-2023, at approximately 12.30pm. Man, that's a long time , and it sure feels surreal , like a lifetime , but also just like yesterday! He's come so far ! Those were some very dark times , mentally, for everyone. I Remember flying up and I was f*cking petrified for countless reasons , mostly I was alone , I was in shock , I was devastated , I'd just left my girls at home crying not knowing what was happening next , although I do remember the flight up there and I f*cking hated every moment, those little planes suck and are scary , mac wasn't able to fly up until the next day, Debbie was waiting for me at starship when we arrived that afternoon & stayed with me until almost midnight. I think by the time Mac got there , I'd already seen countless Dr's, nurses , mental health teams , coordinators , Specialists , and surgical teams . It was a lot. I genuinely felt like my brain was going to explode!
It's f*cking sad looking back , it actually hurts alot . A lot of emotions, but also sooo proud of how far bodhi has came and us as a family! Life will never be the same tbh . I know I've sure as hell have grieved life pre cancer . In saying that 196 days down 💪🏼 bodhi is so strong and resistant , he's a real champ. I couldn't be more proud of him as the awesome dude he is .
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08/04/24
8 April 2024Starship today
Dr. check up
Routine obs
Injection/chemo
2 hour fluid
1 hour iv chemo
Surgery
2 hour fluids
Oral chemo
Went well !
Bodhi’s an absolute champ 🫶🏻
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07/04/2024
7 April 2024Bodhi and Mac flew out at 3.20 today - back to starship staying at the Ronald McDonald house between appointments.
Home Tuesday 🫶🏻
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02/04/2024
2 April 2024Bodhi isn't able to go up to starship this week for part 2 of this phase as his blood counts are too low still .
So will do more bloods on Friday, and try go for Monday app in starship.
On another note - his hair loss has been pretty full on this time round.
Lots of smooth patches
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18/03/24
18 March 2024Bodhi had chemo today.
Went well .
Although he had meltdowns accessing port and de accessing.
His hair is falling out again , they did warn us when he changed phases it would likely happen.
He’s got the worst nappy rash imaginable - his skin looks actually burnt.
They gave his some special cream they make up the hospital to treat it.
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08/03/24
8 March 2024Lots of naps today - it’s been a long week with several chemo treatments and surgery
Keep him in your thoughts
Thank you for your ongoing love and support
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07/03/24
8 March 2024Sharing Courtney’s status share from this yesterday 🫶🏻
For bodhis new phase starting 04/03/24 this phase is a total of 8 weeks giving there are no set backs .
We do ask ALL to please ask before you come over .( I dint care who you are , just ask) We will be back on a very strict isolation again as he will become neuropathic. This phase will be hard enough & we'd like to prevent any outside potential bugs/illness as we can.
If you have been in contact or even think you may have . Please just don't risk it.
Delayed intensification is known for a rough ride usually with a hospital stay or two . So we'd like to do our very best from the get go.
He's currently back on oral steroids , weekly chemotherapy 2x vincristine & doxorubicin . & the pegaspargase on Thursday 2 hour chemo ( HATE this one) he's previously had this & spiked fevers from it . I'm praying this doesn't happen again as he'll be back in hospital for a stay.
He will more than likely loose all his hair during this phase unless he has sometime of super powers 🧘🏼
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05/03/24
5 March 2024Bodhi’s day today - got back to Taranaki midday
Moods are very up and down .
Overall, feels like absolute shit .tired, sore nauseated & hungry.
He has bloods again tommorrow
And then 2 hours pegaspargase chemotherapy is on Thursday at Taranaki base
They have said this phase is really rough 🥺
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04/03/24
4 March 2024The plane trip went well last night. had delays prior & landing got delayed they didn't get into ronald macDonald house until around 8.30-9 pm
Fasting from 6.30 am onwards.
Appointment at 11.30 . Bodhis routine obs went well ! Super fast . Bodhi had to do more bloods . That went OK.
Found out bodhi needed a heart echo to start his new phase . Wasn't booked in to Mac, and bodhi got sent back up to clinic . They then were trying to sort him into the echo . Finally, that was done !! Hours later. Communication between departments is terrible - makes for a stressful day.
Dr. The appointment went well.
Then port access and chemo started . Once that finished he went down to surgery, had to wait around for 45 minutes down there to go in , surgery went well .
Back up to clinic for monitoring, obs were good and bodhi was happy camper with dad .
Had two lunch packs !
He was starving !
Was super nice with the nurse
yay !
And they've finally got back to the Ronald mac room at 6.15pm .
Long day !
Bodhi will be super tired .
They should arrive back in the Naki midday tomorrow
Moving into this phase - he will have chemo every Monday - and will be having a two hour treatment of the pegaspargase chemo this Wednesday at Taranaki base hospital.
He has had this one twice before during his induction phase of treatment. This one’s really rough on his system and he struggled with temps etc last time. So pretty worried.
Big week for such a little guy.
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Bodhi’s next phase
3 March 2024Mac and Bodhi headed back to Auckland this evening , staying at the Ronald MacDonald house - ahead of Bodhi’s new treatments for his new phase starting tomorrow and surgery
They should arrive home midday Tuesday.
We will know more tommorrow about what this will look like
At this stage we’ve been told it will be weekly chemo treatments. He’s starts a new chemo tomorrow too.
This phase will be really harsh and full on🥺
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Happy third birthday Bodhi
26 February 2024Today is Bodhi’s third birthday !!
The last few months have been an absolute whirlwind. With ongoing treatment and the fall out that is leukaemia
However
Today is a day of celebration 🙌🏻
Thank you all for your ongoing love and support
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24/01/24
24 January 2024Bodhi has his bloods done at home again tommorow and provided everything’s ok - he will have another round of chemo at Taranaki base Friday
Next round will be back at starship
Chemo one day then surgery the following day early February
Enjoy this photo of Bodhi happy wee smile tonight ✨
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11/01/24
11 January 2024Bodhi enjoying his weetbix this morning 🥹
Bodhi’s been pretty good overall.
His Eating been OK , lives on chicken flavored chips at the moment. !
He goes through stages where he will just eat one thing - it’s been shapes -crackers - sausages - precooked cold , strawberry’s
Courtney has noticed his skin is very weak , he's got a sore on his knee that just doesn't heal and every time he bangs it slightly bleeds again .
Sunblock doesn’t seem to protect him against the sun
He kicked his toe on the ground and cracked the nail and took skin off . It bleeds all the time with a slight bang to it .
He's overall pretty happy, though!
Rests a lot but plays hard too when he’s up for it.
He has his first chemo treatment in Taranaki next week - and has a at home visit for bloods next week before hand.
These are both firsts in our journey- gotta take the small wins and silver linings 🫶🏻
Thank you all for your ongoing love and support ✨
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Happy new year 2024
5 January 2024Hey everybody it’s been awhile since I have updated this page. - bodhi is trucking along as well as can be expected
He enjoyed Christmas and new years at home with his family. This week seen him back in star ship for a double dose of chemo -travelled via car this time instead of plane so made a few playground stops on the way there. He’s not got much of an appetite due to the chemo and no longer taking steroids so that hunger from the then is not there.
Thank you all for your ongoing love and support.
Things have been really tough for bodhi and his family as they navigate the new normal which as I’m sure you can all appreciate takes a massive toll on everyone
If you would like to follow Bodhi’s journey please find us on FB at Bodhisjourney
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10/12/23
11 December 2023Bodhi’s mum Courtney has made some beautiful Christmas pieces to give away as a way to say thank you to each and everyone of your who have loved and supported Bodhi and their family throughout this journey.
You can find her over @naturelywild
And can find the giveaway on Bodhi’s Facebook page @bodhisjourney
Please head on over and check them out
Again from my family to yours
Thank you so much ☺️
✨Bodhi’s pretty excited for the giveaway.
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9/12/23
11 December 2023Just another reminder of the journey that is leukaemia
Yesterday Bodhi’s hair started falling out in clumps - we knew it would happen
However nothing quite prepares you for the emotional journey and reality that is
Time for a buzz cut 🥺
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6/7 12 23
11 December 2023Bodhi and Courtney found themselves in starship again Wednesday - bodhi had another surgery. Overnight stay in Ronald McDonald house then back home late thursday.
They had a cool little snoopys Christmas
Set up down in theatre.
Thursday also seen bodhi start his next phase on his journey.
Thank you all so much for your love and support.
It truly means the world to us all.
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05/12/23
5 December 2023Today Courtney and Bodhi had a visit up at Taranaki hospital to get some bloods done.
it’s the first time they have been back since the stay that changed their world
As I’m sure you can all appreciate this was triggering in all sorts of ways. All the emotions 😣😭
Bodhi was a champ getting his bloods done today
Tommorrow they fly back to Auckland for surgery Thursday, ready to start his new phase of treatment towards his two year plan
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28/11/23
28 November 2023Bodhi , Mac and Courtney have enjoyed there time at home - settling in to a new way of life - spending time with the four girls.
Bodhi has been enjoying snacking on sausages - a lot lol 😂
Tomorrow they head back to Auckland for bodhis chemo and surgery Thursday - provided all goes well will be back in the naki Friday avo.
Thank you all so much for your continued love and support.
You’re all amazing.
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23/11/23
23 November 2023Today was Courtney’s birthday (Bodhis mum) Today also marked 25 days since they left Taranaki
25 days since the four girls back home saw them. Today they travelled home after bodhis chemo this morning !
They landed in Taranaki just after 3pm and made their journey home
As I’m sure you can all imagine there were lots of tears and cuddles to be had.
Bodhi will continue his journey and they will travel back to Auckland next week for more surgery and chemo. - but in the mean time will soak up all that lost time between them all.
The journey is not over - just changed to another part of there new life
Courtney Mac and the kids will need just as much love and support if not more as they learn to navigate their new normal.
Things will be very different than what they were as they try to keep bodhi as healthy as possible and avoid any illnesses etc.
for now they rest in their home for the first time in a month - all together
Happy birthday Courtney 💕
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22/11/23
22 November 2023Bodhi has had another good day today - he’s been a good mood - lots a laughs and funny moments.
These are the good things Mac and Courtney hold onto at the moment
He received another kind donation from Gabbys starlit hope today partnered with Mischievous monkeys NZ - a beautiful handcrafted made with love monkey soft toy.
Thank you all so much for your continued support and kind donations.
Your all amazing
Enjoy the photo of bodhi enjoying his new round friend (bodhis face is still super swollen from all the meds )
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21/11/23
21 November 2023Hey guys
Quick update today - bodhi had a pretty good day today - he was in a good mood for the most part - which as I’m sure you can all appreciate is few and far between at the moment
So Mac and Courtney have really enjoyed that today -
Chemo again Thursday
Fingers crossed for anther good day tomorrow
Thank you all for your continued love and support .
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20/11/23
20 November 2023Hey guys sorry I haven’t posted in a few days - things have been much of the same. Bodhi doesn’t have a lot of energy - and sleeps lots - he has times where he’s still quite wobbly on his legs and sore. They have settled in the Ronald McDonald house ok - but looking forward to heading home back to Taranaki hopefully soon. The girls can’t wait to be reunited with there parents and bodhi.
Enjoy this photo of Bodhi’s beautiful wee face (swollen for the medications )
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17/11/23
17 November 2023Bodhis had a quiet day today
Consisted of mostly sleeping - or laying in bed. He has had no energy.
He doesn’t like the shower and insists on the baby bath.
His favorite foods are
Hot chips (at room temp)
Chicken nuggets/bites
Pop corn
Chips
Spag bol
Fresh Apples
Shapes crackers
The little uncle bens rice cups
And enjoyed a brownie today.
Thanks for your continued love and support ✨🙏
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16/11/23
16 November 2023Bodhi had his first clinic visit today, it went well.
He had another round of chemo today - he's been very grumpy this afternoon , will be from the chemo among many other things and isn’t feeling the best.
His blood results are still on the rise (doing what we want them to do) so that's a real positive .
His walking has been better today so that's been awesome for Mac & Courtney to see Bodhi not being so weak and wobbly on his feet.
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15/11/23
15 November 2023Hey guys - today has been a quiet day at Ronald McDonald house for wee bodhi - he has had very little energy - has slept a lot and when he’s not been sleeping he’s been sitting nice and still. . He asked for a bop bop tonight (bottle ) first time in a long time after working out that’s where the docs/nurses were hiding the meds. He has had really sore - weak legs today.
He has chemo again tommorrow
Please keep bodhi in your thoughts
Thank you for your love and support
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14/11/23
14 November 2023Today bodhi had his chest needle removed - as Courtney and Mac prepared for their move to Ronald McDonald house.
This afternoon their discharge was completed as they carried all of their stuff from the hospital down the road a little to what will be their new home for the time being. ✨🧡
Thank goodness for the Ronald McDonald house for out of towers like them
Bodhi being a bit unsure asked to go back to his room (at the hospital ) a little after they arrived
As I’m sure you can all imagine this is a big step and moves them to the next part of the journey.
Bodhi still has really low haemoglobin and neutraphil levels.
He often is low on energy and has
Lots of big emotions for this little guy 😞
He enjoyed another Spag bol dinner tonight !
Mac and Courtney have spent the last wee while learning all the ins and outs of the many medications they will be preparing and administering throughout the day and night with bodhi.
Keep them in your thoughts as they navigate this next part
Thank you all for your continued support and kind words ✨
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13/11/23
13 November 2023Poor wee bodhi was very grumpy and sore today
With very little energy.
However managed a to spend some time in the play room today so that was nice
Mac and Courtney and preparing for the discharge to Ronald McDonald house - fingers crossed there are no more delays or deterioration with bodhi. 🤞
They are checking haemoglobin levels again as they are quite low.
His neutrophils are really low too.
He’s got ulcers in his mouth - from treatment 😞
Courtney and Mac received bodhis cool little NG tube backpack - in a neat giraffe design.
Thank you for your ongoing support and Kind words. We really appreciate it ✨
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11/11/23 12/11/23
12 November 2023This weekend has been a wee bit of a rough one for Courtney and Mac emotionally
Tomorrow being the third week of this journey
Missing there little ones back home, feeling the cabin fever of being stuck in hospital and being amidst the unknown moving forward
Bodhi has had an ok weekend. He’s really sore - and pretty grumpy all round . It’s tough being two and being stuck in a hospital having all sorts of daily meds /treatments and OBS
Fingers crossed tomorrows a better day.
Thank you all for your ongoing love , kindness and support.
Feel free to pop in over to bodhis journey page on Facebook - ✨
Bodhi enjoyed his Spag Bol tonight for dinner 🥰
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10/11/23
10 November 2023Hey guys
Not a lot to update today - has been a day of the usual OBs etc no major procedures or chemo today. The usual new normal daily meds.
Bodhi has been in ok spirits today.
Enjoy the cheeky wee face of bodhi snacking 🧡
Thank you for your ongoing love and support
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09/11/23
9 November 2023Hey everybody - Bodhi had another round of chemo today and another surgery. He’s kept in reasonable spirits today - has been good with the nurses and with his OBs
He’s certainly proving to be quite the fighter 🙏
Thank you all so much for your continued love and support.
Fingers crossed for a good nights rest and another reasonable day tomorrow.
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08/11/2023
8 November 2023Another update guys - bodhi is doing great with NG tube , was a rough morning with nurses and Obs because of yesterday after yesterdays traumatic events
Luckily, he had his favorite nurse on today .. and he warmed up to her
He absolutely loved the balloons!!
Kindly donated by Gabbys starlit hope
Has been playing with them all day !
Mac and Courtney have been learning the NG tube today, ready for when they get to go to the Ronald McDonald house , meds /feed /changes, etc .
Thanks for all your ongoing support and if you want to keep following and see other bits and pieces head on over to Bodhis Journwy on Facebook
✨🙏
Love and light to all you beautiful kind and generous people
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07/11/23
7 November 2023Today has been a bit of a rough one for both Bodhi and Mac and Courtney
. Bodhi had his chest port changed which was painful and traumatising for everyone involved. Along with a NG tube put in as bodhi is refusing meds and bottles now along with a low appetite being a recipe for disaster ( which they were using along with foods to disguise medications but he has wised up and now refusing ) after his temp spike last night it has delayed moving to the Ronald McDonald house for the time being.
He has however enjoyed snacking on his pizza flavoured shapes today. And a room shift giving a slightly different view. Has been nice all round.
Please keep him in your thoughts and surround him with living vibes as they continue to navigate this unfair journey.
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06/11/23
6 November 2023Today has been another positive day today - no invasive treatments other than OBs and lots of meetings for Mac and Courtney with doctors. Having received more positive news regarding his diagnosis today. Bodhi has ups and downs with moods and energy as to be expected with all that’s going on. They are hoping to be relocated to the Ronald McDonald house soon so that’s exciting news.
Bodhi is suffering from really sore knees today - such is the territory with this type of cancer
Please keep him in your thoughts and well wishes 🧡
Today marks a week since the devastating news and flight to starship
There four girls back home are doing really well , resilient , brave sweet little girls.
*unfortunately this evening saw Bodhi take a wee turn - he has spiked a temperature - and is now being treated with antibiotics - having bloods and swabs etc done to try and spice the issue - hoping for a speedy recovery after what had been a good couple of days.
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05/11/23
5 November 2023Hey everybody
Today has been a good day for bodhi he was more at ease with OBs being done - which was a rare treat for everyone involved and has been in a pretty good mood all day.Courtney and Mac have enjoyed bodhis good moods - makes things much easier on everybody. It’s the small wins ✨
He’s enjoying his new tablet he got - which was kindly donated - thank you so much !
Fingers crossed for a good nights rest 🤞
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04/11/23
4 November 2023Hey everybody
Bodhi had his second round of chemo today - slightly different to Wednesday’s one as this one is specific to the type of luekemia he has - he’s in reasonable spirits today - seeing a few more giggles and smiles which has been nice for Courtney and Mac
He’s made friends (finally) with one of the nurses. Fingers crossed for a smooth sailing evening
Thank you all for your continued kind messages and support means so much.
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03/11/23
3 November 2023Hey guys - quick update today
Another day of observation
Usual obs - bloods etc
Bodhi’s feeling pretty crappy today. He’s still sore from surgery among other treatments
Emotionally very overwhelmed
Which in turn is overwhelming for mum and dad too. Thanks for all your love , well wishes and support. Means a lot
Enjoy this photo of cheeky wee bodhi today
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02/11/23
2 November 2023Hey everyone - bodhi had a reasonable nights rest last night - without temperatures which is a massive positive.
He woke this morning very sore and tired, little to know energy as to be expected with the first round of chemo yesterday. He’s not in good spirits today - and keeps asking mum and dad to go home, and to go in the car - mum lets him know they dont have the car with them so now asking to go in the plane. - bless him.
Suffering with a sore neck and back.
Today there is no invasive treatments so that’s a bonus other than the regular bloods and obs.
Fingers crossed this evening and tomorrow is a better for him.
Mac and Courtney wish to thank everybody for their kind words and generosity in these tough times.
Please be patient with messaging as I’m sure you can all appreciate they are both feeling very overwhelmed and tired/stressed.
This weeks been a whirlwind - and not in a good way.
Enjoy the picture of bodhis cheeky smile taken this morning.
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Account update
2 November 2023Hey everybody thank you all so much for your donations and kind words.
Just letting you all know we will be updating account from Courtney’s-account to Macs account for the donations as there were some ID issues surrounding Courtney’s account.
Rest assured all donations will be going towards original plan - of helping the girls - max - Courtney and bodhi through these trying times
Thanks
Sheri-lee
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1st lot of chemo done
1 November 2023Bodhis looking heaps brighter and much happier after this mornings transfusion.
He’s had his first lot of chemo this afternoon
It’s been nice for Courtney and Mac to see him perk up a wee bit after a pretty rough morning
Taking these small wins
Watching him play and eat - 🧡
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Blood transfusion
1 November 2023Bodhi has had to have a blood transfusion this morning as his hemoglobin is really low.
Once he’s finished this transfusion they will proceed with his first chemo treatment.
Please send all your hope, love and healing vibes to this sweet little boy and Mac and Courtney 🧡
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01/11/23
1 November 2023Hey guys - bodhis very sore today after surgery yesterday - having a hard time controlling his temperatures - awaiting some more results- first chemo treatment still set for today
Thanks for all your love and support.
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Acute lymphoblastic leukemia
31 October 2023Bodhi's diagnosis was updated this afternoon due to further testing as
Acute lymphoblastic leukemia
Tomorrow morning he starts his first chemo treatment.
Sending so much love and light to Courtney, Mac and beautiful little Bodhi.
As they embark on a new point in their journey.
A photo from tonight - bodhi playing with his new duplo Lego kindly gifted by the Gabby starlit hope foundation.
Thank you all for your generous donations and kind words
Courtney and Mac are seeing just how quickly there village is growing - it’s truely beautiful
So thank you all from the bottom of my heart.
Sheri-lee x
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First surgery
31 October 2023Bodhi had his first surgery this afternoon to find out what type of luekemia he has - how far along - how aggressive etc
He is now resting 🧡
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Get better soon little man! Heal fast buddy
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