Next step
10 August 2021
After transitioning to Waikato, Arky is closer to family and he has started having visitors which is amazing considering a lot of people haven’t met him before, or haven’t seen him in months or years!
It’s been amazing to see him start forming relationships with these people, most children get this interaction early in life where as Arky has been in a form of isolation since birth and 2021 is bringing all the love.
We now are awaiting our package to get started on going home. This could take a while as there are no timeframes allocated when it comes to finding the right staffing system to support such a complex dude.
Hopefully soon Erin and Nate can take Arky on day leave (where he can leave the ward during the day and do activities in preparation to going home. A good opportunity to get Nate and Erin confident in managing with all the equipment etc.
As for home, Arky needs a healthy home standard to support his lungs and also to help him mobilize around easily, Nate and Erin have been taking turns with family help to wash down walls freshen them up and hopefully some clean new carpet to promote a clean home and reduce dust capacity.
Talk about being busy!