4yr old James has no cure, no treatment. Help him complete his bucket list & help his family

Cause page created in the Kiwi Kids category by Nicola Swan for "James Swan & Family"

  • $2,975.00 donated
  • 79 generous donors

James' is 4, his life turned upside down in July 2016. James has a rare neuromuscular disorder that is robbing him of his body functions.

Main image

James is so rare to date there is no name for his condition. In July 2016 he was admitted to hospital where he stayed for 2 weeks as he had stopped eating, and was incredibly wobbly on his feet. Since then our lives have been a roller coaster of medical appointments. James is now in a wheelchair and tube feed. His speech is hard to understand and he has moments where he blanks out. James' fatigue levels are extreme and his gut no longer works properly. James' decline has been rapid and no one can tell us how long we have with him. We know it's limited so we will do everything we can to make his time here memorable for him, his 2 brothers and us his parents.

6 weeks before James became unwell we purchased a house based on our 2 incomes. Overnight we were plunged into a one income family. We do not have the funds to give James the experiences he deserves. We only just make ends meet. All funds will be used to create amazing memories eg. A trip to diggerworld in Invercargil NZ, a helicoptor ride, a family holiday to Queenstown where he can visit his old play centre etc.

Page created by:

Nicola Swan

Individual
Wellington

I'm James' Mum. Watching your child decline daily with no cure in site means I'll do anything to give him memories while we still can.

All funds raised benefit:

James Swan & Family

Funds will be paid to a verified bank account of Nicola Swan on behalf of James Swan & Family.

  • $2,975.00 donated
  • 79 generous donors

$2,975 donated

$50,000

  Donate now   Add to plan

This cause page was created on 05 Oct 2017 and closes at 23:59 NZST (UTC +12:00) on 30 Apr 2018.

Donor Confidence Key  

  • Givealittle moderated
  • Donor validated
  • New Zealand registered charity
  • Eligible for tax credit

Concerned? Report this page

Email your friends & family

Customise (* required)

Separate using commas e.g. johnsmith@email.com, janesmith@email.com


×

The link has been copied

×

Report this page

Your details (* required)

×

Donor Confidence Key

Givealittle moderation

Givealittle values the importance of an informed decision when making a donation. We check to make sure that adequate information is provided to donors and that pages comply with our terms and conditions. Pages are not browseable nor searchable until moderated and donor validated. For more information, check out this support article.

Donor validation

A page becomes donor validated when it receives donations from at least three different sources. Pages are not browseable nor searchable until moderated and donor validated. For more information, check out this support article.

New Zealand registered charity

Is registered with the Department of Internal Affairs (DIA), Charity Services (formerly Charities Commission) as a charity.

Tax credit eligibility

Has been granted 'donee status' by Inland Revenue (IRD). Donors to a page with tax credit eligibility may be able to apply for a tax credit.

×