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Caidens Dream Trip To Blueys World!

  • Caiden has had a rough few days

      3 November 2024
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    Sadly Caidens condition is worsening as his brain stem tumour continues to grow and press on vital parts of his brain. He has had a couple of ambulance call outs this week, and we have increased his dose of dexamethasone to help with symptoms and improve his quality of life that he has left. Finally the drs listened to our days and days of begging for them to up Caidens dose of this medication after he started declining day by day at home. The medical professionals said he "didn't need an increased dose yet". BUT since we have increased his dose he is able to drink from a straw again, swallow tablets again, and he has had no break through head pain all day today. Most days we've been having to top up his daily morphine 2 to 3 times on top of his twice a day slow release morphine doses.... so this is such a blessing.

    Because Caiden lost his ability to suck from a straw, swallow tablets and drink safely without aspirating, he had a nasal gastric tube inserted on Saturday. This allows us to give him fluids and medications via the tube if he starts struggling with these things. The last thing he needs is aspiration pneumonia again.

    Caidens left side is now weaker. He hardly uses his left hand now as it remains closed. And he is very wobbly with his walking now. But he never lets this stop him from doing the things that he loves ❤️

    We still hope to get him to Blueys World next week! 💙 Thank you all for making this dream of Caidens possible 🙏 ❤️

      3 comments  |  Login to leave a comment

    • 05/11/2024 by Kathleen

      Sending love to you all 💙

      Praying that you can have Caidens special trip to Blueys World 💙💓💙

      Love Kay ❤️

    • 05/11/2024 by Lynne

      Thank you for the update I hope you all get to Blueys World.

      Sending you all love and best wishes.

      Lynne B 🙏 ❤️

    • 06/11/2024 by Robby

      Caiden you’re such a champion. Keep up the fight so you can get to Blueys World next week. I’m sure you will have such a fun time with all your family. I prayer for strength & courage to surround you & your family to achieve Blueys World. Lots of love to each of you Robby

  • Caiden's Special Visit From Bluey

      28 September 2024
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    Caiden is still fighting this monster like the true warrior he is.

    We have managed to wean him off the high steroids as of Thursday. He is still taking regular morphine to make sure that he doesnt get any breakthrough pain as his brain tumour continues to grow.

    Caiden was very lucky to have a special visitor arrive yesterday all the way from Australia! BBC Studios kindly arranged a special Bluey visit for Caiden! Caiden loved that he got to show Bluey where he lives, & he can't wait to visit Blueys house (all going well) in November. We are so thankful to BBC Studios for going above & beyond for Caiden given that he may not get his dream visit to Blueys world.

    In the meantime Caiden has been enjoying all the things that make him happy. Because the money we raise is to fufill all his dreams and wishes, thats exactly where we want the money to go. Rather than go places, he would rather grow his animal family that brings him so much joy. He currently has over 100 birds, tadpoles, a bearded dragon lizard, & 3 fish tanks full of fish!

    Sadly Caidens right leg has been getting weaker over the last couple of days. He has had 1 fall, & stumbles more now. He never complains about it.

    We are continuing to raise money to keep fulfilling Caidens wishes as he continues to fight cancer with bravery and courage. Without the help of all of you beautiful souls, we wouldn't be able to do half of the things we have done for him.

    Thank you to each & every one of you for your kindness & love.

      1 comment  |  Login to leave a comment

    • 29/09/2024 by Natalie

      Sending you all so much strength and I really, really hope Caiden gets his dream trip to Bluey’s house in November. As a fellow mum of a Bluey mad 5 year old, I have not been able to stop thinking of Caiden. In the event he is unable to make the trip, would he like a special souvenir gift from Bluey’s house? I am going in January and would be more than happy to bring some things back for him if he would like that. Sending love and strength to a very brave little boy and his family xxxx

  • Devastating News

      12 September 2024
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    We hoped that we would never have to make an update like this. We always thought that if anyone could beat this cancer that Caiden would. We hoped, we wished & we prayed for him to be able to keep fighting this cancer with quality of life until a cure was found for him 😢

    Sadly yesterday it was confirmed that Caidens tumour is progressing. There is no further treatment options available for him, so all we can do is keep him comfortable until he takes his next journey ahead of us. A journey that no child should have to take alone ahead of their parents.

    Caiden has spent some time in hospital recently for severe head pain & for severe tiredness. We now have his head pain under control with daily morphine, dexamethasone & other pain relief. It was awful seeing him in so much pain & not being able to help him 😢 His eye is now turning inwards because of the tumour growth which is sad to see.

    We still hope Caiden gets to Blueys world, but it's looking like he may never get to fufill that wish which breaks our hearts even more.

    We have been spoiling this boy with everything that makes him happy, including a huge amount of Bluey toys that he received yesterday. We will continue to fill his days with love, happiness & bringing as much of his wishes & dreams to him in every way possible.

    We are still holding onto that glimmer of hope that he will continue to be the miracle he has always been.

    Please don't stop praying for our boy. He needs all the prayers he can get right now 🙏

      2 comments  |  Login to leave a comment

    • 16/09/2024 by Robby

      Such a heartbreaking post to read. My heartfelt love to you all thru this difficult & sad journey.

      I will keep praying for Caiden (as I do each day) that he will get strong enough to experience his Dream of going to Blueys World. I know God is surrounding you thru this time with arms of love & strength & encouragement. My thoughts & prayers. With love Robby

    • 16/09/2024 by Maren

      Hi Caiden, thinking of you and your beautiful family everyday, sending you all tons of love.

  • Keeping you all in the loop

      7 August 2024
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    Hey everyone,

    Thank you for your continued love, support and donations. Because we have been gifted accommodation for 4 days from Tourism Queensland and airfares from Air New Zealand for Caidens trip to Blueys World, I would just like to let you all know what we intend to do with the funds raised since some things have been gifted.

    We will be extending our holiday to Queensland by another 7 days, so we will need to pay for accommodation for those extra days. Along with the extra accommodation costs we will also need to pay for car hire, daily activities, food, gifts for the kids that they may like to buy over there, and we are also going to do a few smaller adventures leading up to the November Bluey holiday. We have booked a trip to Rotorua so that Caiden can experience Wingspan down there! He is so excited to get up close and personal with some more birds there!

    Rest assured all funds are being used to create memories and fulfill Caidens wishes.

    Again thank you for all the love you continue to show for Caiden and our family ❤️ We are so lucky to have you all as our village x

      3 comments  |  Login to leave a comment

    • 12/08/2024 by Maren

      Hi Caiden, I hope you and your family have the best time making memories and having heaps of fun. Much love to you and your family. Thinking of you all.

    • 12/08/2024 by Robby

      Have lots of fun on the trips your mum & dad have planned for you in the coming weeks. I hope you will post some photos of the awesome experiences you will all enjoy together. Lots love to you all. Have just the best time. 💛🐨

    • 21/11/2024 by Emere

      Hello Caiden so so happy you are going to blueys world and also doing other activities.Enjoy all the fun your mum and dad have planned for you,sending you big hugs to you and your family

  • WOW!

      4 August 2024
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    We can't believe it!!! We can't believe that our beautiful boys wish to go to Blueys world will be coming true thanks to all of you beautiful people! 💜 Thanks to Air New Zealand and Queensland Tourism and Events for gifting us our flights, accommodation etc as well! 💕

    There are no words that can describe how thankful we are for all of your donations. Your love, support and kindness is felt deep within our hearts 💕

    Thank you for being our village 💙 Thank you for allowing our sons dream to come true ♥️

    Sending love from our family to yours 🥰

      1 comment  |  Login to leave a comment

    • 21/11/2024 by Emere

      Yay enjoy your time there Caiden

  • Thank You

      28 July 2024
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    Thank you to everyone for all your messages, love, kindness, donations and support ❤️

      0 comments  |  Login to leave a comment

  • MRI Day For Caiden Today

      24 July 2024
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    Firstly I'd just like to thank you all for your kind thoughtful messages, posts and comments for Caidens MRI he had today.

    The oncologist is waiting for the official MRI report tomorrow as she said the images are quite tricky to read this time. Caiden has 2 new areas of cyst in his tumour that have appeared, so now has 3 cysts in total. She said that makes measuring quite tricky. But she did say looking at the tumour that it looks like it measures reasonably the same size as last time. So we just hope the report reflects the same as her thoughts. There is a thicker highlighted rim on the tumour which she said is hard to know what it is exactly. Could be radiation necrosis, could be tumour progressing. She said only time will tell. They look at how Caiden presents rather than what an MRI tells them, as true progression will be very apparent in how he presents. She is very happy with how he is looking and was very impressed at his running and energy levels today.

    I asked the dreaded question today. I asked what options we have left in terms of radiation if Caidens tumour starts to progress again.

    Sadly there is no further options that they have from here if his tumour progresses. A person can only receive 2 rounds of radiation therapy in a lifetime. That was a very hard pill to swallow -Zero, nothing, absolutely nothing they can do to give him more time or save him once things decline again. I cried many silent tears on our drive home today.

    Still hoping for that miracle.

      1 comment  |  Login to leave a comment

    • 29/07/2024 by Kathleen

      Praying for Caiden and his wonderful family 💙❤️💙❤️

  • Caiden is still excited to see Blueys World

      4 July 2024
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    Hey everyone

    We just wanted to let you know that Caiden is still battling cancer like the superhero he is! We have had a few worrying moments here and there with regards to his balance, tiredness in his legs, and increase in drooling and slurred speech sometimes.... but he seems to have perked up again the last few days. We are living in such an awful world of the unknown, and anticipatory grief is something that hovers over us so heavy.

    Caiden is in the position where he could have puesedoprogression after radiation. He had this after his first round of radiation at about 3 months post treatment, until about 8 months post therapy. Puesedoprogression mimics tumour progression and then subsides over time. We hope that is is all it is. If it is not puesedoprogression it could be tumour progression, or it could just be a bump in his journey. That's the thing with DIPG.. not even the professionals have clear cut answers. It's all just a wait and see and hope for all of us.

    In the meantime we are still making memories, and planning all of Caidens dreams for the future. Blueys world is something he is very excited about, so we really hope he gets to visit in November.

    Caiden will be restarting a drug to target one of his cancer mutations again hopefully next week. We will be introducing other medication to help reduce the side effects that he had the last time we started and had to discontinue.

    We thank you all for your kindness, empathy, love and support ❤️

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