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Auckland
This is Cam aged 21 recently diagnosed with Tatton Brown Rahman Syndrome (TBRS), a rare and recently discovered syndrome. We are reaching out for support to raise money for the TBRS Community Organisation. Cam is embarking on a challenge to walk 100km in the month of April.
It is of high importance that people with TBRS obtain sufficient exercise so this is an exciting challenge for Cam.
Any donations will be much appreciated.
We are members of the TBRS Community
The TBRS Community's goal is to advance TBRS research through the TBRS Collaborative Research Network and a global patient registry. We bring together TBRS families by hosting an annual Family Conference, providing education, emotional and crisis support.
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