My appreciation for every single one of you, your time, words, energy and donation is beyond words so please know I truly am indebted.
My homecoming from Cologne was not what I envisaged or hoped. Within 24hrs after arriving home I was admitted to Wairau with a spontaneous sepsis in my abdomen. While I was rather immobile & lying around in hospital for 17 days I got a DVT in my left leg.
I managed to put this all behind me and I was discharged on the 23rd of Dec, just in time for Christmas with the family.
Well the next part is not ideal, but definitely wasn’t a waste of time either. I am so grateful that I had the opportunity to go to Cologne and try this treatment, I am not one to leave any stone unturned.
I had a scan to see where things were at and the sad news is, there is overall growth!!! 😰 Cologne didn’t return the results we had all wished for, which was stability of disease. Clearly the tumour burden was far too great for my immune system to truly get hold of and nail them. But the Cologne treatment did uncover some gems for me.
When I started I had circulating cancer cells in my blood and when I left these were no longer so that’s a huge bonus.
They also found in their laboratory that the cancer cells are sensitive to a targeted immunotherapy called Herceptin. Which I would have never known otherwise. This is available here in NZ under the private hospital scheme which means this will need to be paid for each dose. I have spoken with the oncologist and she is very happy for that to go ahead. Currently the oncologist has me trying a funded chemotherapy treatment.
I have been very poorly since being discharged from hospital due to the size and the tumour burden present. The oncologist believes the sepsis in the abdomen is the straw that broke the camels back.
I was so well in Cologne for 3mths, walking up to 25kms some days, we walked everywhere. All muscles built are now long gone!!!!
I am taking it one day at a time, one foot in front of the other. But not feeling 100% and having pain present 24/7 is very debilitating and exhausting.
I have my everything crossed that this treatment gives stable disease, and even better would be to shrink the tumours!
I don’t think it’s too much to ask, if I could get some down time, stop treading water for a bit and get my boring, simple life back.
Thank you all for your care and support. ♥️