Back to page

Carlos vs Cancer: The Fight of a lifetime

  • Things are looking Up

      14 December 2021
    Main image

    To my amazing Friends and Family,

    This will be my one of my last updates on this page.

    In contrast from last time things have gotten much better.

    ➡️ I have been focusing on my recovery and re-introduction back into society and "normal life”.

    🚶🏽 I can go on long hikes and I have just been able to start exercising, light exercise of course.

    🥣 I can finally eat and drink what I want without thinking if it is going to cause me any infections.

    📚I have just started my masters degree, and I am studying full time but in January I will switch to part time as I have also landed a really nice job and I am absolutely thrilled about it.

    As you can see life is sweet, it's taking some time to adjust but I'm nearly there.

    💉 I'm doing well health wise, so much that I have got my first covid jab.

    🩺 I don't have to see the doctors anymore 😀 ! I just have to go for a blood check up every 3 months or so to make sure that the cancer has not come back, which I'm sure it won't, as doctors gave me the best treatment possible and are very confident and positive as my prognosis has always been good - I mean, it's still cancer but at least the one where there was no need of stem cell transplant.

    2 Out of 3 tests they do with bone marrow samples have come back negative for residuals of leukaemia.

    🩸 We are still waiting for the 3rd one to extra confirm that is the case, that sample has been sent to Melbourne in Australia (pretty flash, my blood gets to travel more than I do these days).

    We can almost say that I am in remission!!! It's kind of like I've graduated but I don't have the certificate.

    🙏 I'd like to thank you and acknowledge the amazing and overwhelming response that I received through this page and in my situation, I couldn't have done this without your positive and kind words.

    💚 Every call, every message, every email, every video and every hospital visit meant the world to me.

    💙 It was amazing to reconnect with people from all stages of my life, primary, secondary, high school, previous work colleagues, and people that I've met in my travels, all of you mean the world to me!!!

    💙 💚💙 I am incredibly humbled by the love and support that you have given me.

    ❤️‍🩹 Finally would like to thank my nurses and doctors that have been nothing but kind considerate and accurate throughout this whole experience, you have saved my life and made me feel better on the most horrific days.

    🎗️I will let you all know when the "certificate" comes back to confirm my full remission.

    💛 Aroha,

    Carlos 💛

      0 comments  |  Login to leave a comment
  • Update from Carlos: On his way to recover from Leukaemia, the battle has been the worst its ever been.

      29 October 2021
    Main image

    My last round of Chemo.

    👎 It wasn't great.

    🤒 I had high temperatures of 42degrees, which literally made me hallucinate. The special chemo medication that I got approved for on compassionated grounds... well it's like my body stopped tolerating it. I was given some other medication to help with the fever and then they decided to postpone the chemo during this last cycle in case it wouldn't agree with me.

    Well it didn't.

    🛑 We stopped the chemo because it was that bad. It was like my body is just fed up from being up and down.

    👀 My eyes got really inflamed and had to get my eyesight testing too, one of them got really weird... I started to wonder if i could pull off eyepatch look? (ha, that's a joke... you need a sense of humour to go through this)

    💔 While I was recovering from this round of chemo, my grandpa passed away in Mexico. I have so many good memories of him. It's so hard to be so sick and so far from family during a pandemic when this stuff happens.

    ❤️‍🩹 This round of chemo and 'recovery' (we'll get to that in a minute) have been incredibly hard. Not just on my body, but my mind and emotions. Somedays just really suck, I mean I do have cancer, so ya it would suck, but it really can get to you.

    ⭐️ I finally finished chemo (thank god)

    🤒 My recovery since my last round of chemo has not been easy. It wasn't restful, and I barely spent any time at home to begin with.

    🏥 I had been discharged from hospital not knowing that after only a couple of days after i was going to be re-admitted and that I would have heaps of ongoing doctor appointments.

    ⚠️ I was admitted into the Emergency Department in Christchurch Hospital as I was experiencing 39 degrees fever. It was considered at first as febrile neutropenia, basically I did not have an immune system.

    🧪 After some tests they've discovered I had a bacteria called streptococcus the the doctors thought it was sitting on top of my heart as my blood pressure was extremely low so i spent 3 days in ICU trying to get it back to normal.

    🧪🧪🧪 While in ICU had a few echocardiograms, X-rays, CT Scans, among other procedures and tests too.

    🧪 I got diagnosed with endocarditis basically inflammation of the heart, in my case due to chemotherapy, plus the bacteria they found.

    💉 While still in ICU I received a lot of liquids and then suffered from fluid overload.

    I was 8 kg over baseline weight, this consecutively affected all my organs making them inflamed.

    I was presenting discomfort in my belly area so another CT scan was needed.

    😷 After receiving the results then general surgery department suggested a gallbladder surgery as it was believed I could have pus and infection in the area preventing my liver to function properly, luckily when they went in, they only drained bile.

    I still have the drain and tube 🙃 that was given to get rid of the extra liquid, it is going to be removed on the 2nd of November.

    💊 I was given another medication that worked and in a week I was back to my normal weight.

    🤒 After all of these interventions I continued to experience 39+ fevers making doctors question where the infection was coming from and experimenting with different antibiotics.

    🦷 Prior to having my cancer diagnosis, I was starting to feel a slight ache in my tooth. I then found out after my cancer diagnosis that I required a root canal, but I couldn't have it done due the cancer.

    😩 However, it was decided that it could be the source of infection and they ended up extracting it.

    🍒 For the cherry on top due to the constant change of antibiotics I ended up getting a horrible rash starting on my belly spreading rather quickly to the rest of my body ( yes, all of it ) and the rash itself was very angry.

    💊 To combat the rash, I switched antibiotics once more and started to recover and fevers were less frequent.

    📆 I was admitted on the 13th of September and discharge on the 29 of September.

    🏥 Unfortunately this wasn't enough as I only got to stay home 2 days and got re-admitted to hospital.

    This time life was a lot easier compared to the last admission - I was only there for a week and got sent home with Home IV antibiotics meaning I had to be connected to my antibiotics 24 /7 through a line, having a nurse to come home every day to change it - yes this included the weekends.

    ☠️ After all of these problems and complications I didn't think I was going to make it to my 32nd birthday.

    ☠️☠️☠️ It is hard to believe that I nearly died 3 times prior to my birthday.

    🎂 Yes that's right I celebrated my 32nd birthday in October.

    💫 Despite of all of it, I am still here.

    💙 This birthday to me is probably the best birthday of all as I literally got the chance to reborn again.

    👨‍⚕️ 👩‍⚕️ 🧑‍⚕️ This whole week I have been going to medical appointments and every single issue that I have or had is improving.

    😆 My hair is growing back and i cannot be any happier.

    I still have a long way to go, a bit longer than expected and I am just waiting to receive the sign off from Haematology to confirm I have no trace of bastard leukaemia.

    🔥🔥 Life is good at the minute and I'm loving it!

    Everything is going good these past few days.

    I don't have to see my drs at the Haematology dept every week, its switching now to next appointment in one month 💪🏼💪🏼💪🏼

    ✨ I finally got my Home IV antibiotics line removed on Wed Oct 27

    💜💜 Thank you all for your constant support during these terrible times, last update to come once i receive my last bone marrow results aprox 2 weeks. Loads of good vibes Carlos

      0 comments  |  Login to leave a comment
  • Update From Carlos - Chemo Round 3 Sucked

      27 August 2021

    Sorry for the delayed update, Round 3 of chemo really took its toll on me.

    So here we go: Round 3 started on July 30.

    I spent six days in hospital as an in-patient for my high dose chemotherapy on Cytarabine. I felt like crap during this whole round, with heaps of nausea and discomfort.

    I finally finished the treatment feeling rather rough and returned home to Dan and pups for four days to recover between my chemo rounds.

    To say that the recovery time was anything but recovery would be an understatement. I was so ill I unfortunately I ended up back to in the hospital Intensive Care Unity (ICU) for two weeks of my recovery window.

    I had gotten a bug, that would usually not be a problem, but because my immune system had been so compromised due to the treatment, I was gravely sick, with fluctuating fevers daily and I was in a lot of pain, and required 24hr care.

    I lost count of all the tests done to rule out any potential diseases and infections. Amongst the tests they did a Covid test - that we all know is very unpleasant - as well as a bronchoscopy as doctors thought I could have a blood clot in my lungs (apparently very common amongst cancer patients), but thankfully I didn't have any.

    I also had 3 CT scans to check all my vital organs were working properly. They got rid of my Groshong line (this is the one they use to administer my chemo) as they did discover a blood clot in one of the tubes.

    On top of all that, ICU had to keep a close eye on me as my blood pressure was dangerously low and my oxygen levels dropped so much that I needed a machine to help me breathe during those weeks.

    This time no pictures or that much rest in between cycles. I'm exhausted and trying to rest up before it all begins again.

    Coming Up:

    Monday August 30th, I already have my next bone marrow test

    Wednesday September 1st, I have one more CT scan to benchmark my health, just in case things get nasty again. Also I will have my new line ready to start my 4th round of Chemo (and hopefully last).

    Thursday September 2nd: I begin my 4th round of chemotherapy.

    I feel like this is finally coming to an end. Every cycle has been so different, I hope this last one treats me well, because Round 3 was rough.

      0 comments  |  Login to leave a comment
  • Update from Carlos

      3 July 2021
    Main image

    So my second round of chemo has ended and it was a rough one.

    Completely different to the first cycle, but everything was manageable.

    It's been a week since I've been discharged from hospital but still experiencing some chemo side effects. My blood counts have all dropped as the chemotherapy takes it’s full effects. It will start to rise again over the next couple weeks so I can have a bit of normality for a few days before going into round 3.

    My bone marrow should be able to start creating normal cell counts again too.

    In the meantime I need to take extra care as my inmune system is virtually non-existent, fevers can spike at any minute as well as infections.

    I’m being monitored very closely so I need to go to hospital every other day for regular checks and blood tests and if required a top up of plalets and hemoglobine "blood transfusion".

    This next bone marrow test is the most important test of the whole treatment, as it will define the course of rest of the cycles.

    It was also decided to introduce a new drug that will help destroy the protein that covers the cancer cells, this will increase my chances of avoiding any potential relapse in the next 5 years. This drug has been in the market for some time and is proven to be effective, so expectations are high. This drug however is not funded by the healthcare system but my consultant has managed to get this for me for free on compassionate grounds. There could be some harm to the liver so a full test is required before proceeding with it.

    Over all I have very high spirits; I had fantastic treatment in Auckland and now that I’ve moved to Christchurch, my treatment here is more personalised.

      0 comments  |  Login to leave a comment
  • Update

      20 June 2021

    Carlos is now being treated at Christchurch hospital and this week started his second round of chemo treatment. He has two sessions per day for 9 days then will have a couple weeks before the next round.

    The treatment is hard on Carlos’s body and is understandably taking its toll. He is being monitored closely and getting the best possible care, but still had a long road ahead.

    Both Carlos and Dan have been overwhelmed by the love and support shown by so many people around the world. Everyone’s messages are like a breath of life so please keep sending positivity and well wishes as Carlos continues his fight.

      0 comments  |  Login to leave a comment