Round the bays for CFC
Cardio-Facious-Cutaneous Syndrome (CFC) is a rare condition it is estimated that there are less than 500 confirmed cases worldwide.
Wellington
Our daughter Jenna-Faith age 6 has this syndrome and there are only approximately 11 families in New Zealand with children with this condition. Although there may be a few we are yet to find.
CFC International is the world wide organisation who funds, conferences, supports families and helps with research and number connects families from around the world. We are raising money to help families like ours by helping the organisation
Jenna-Faith Nichol's involvement (page creator)
Our daughter Jenna-Faith was diagnosed with the condition at age4. There is little documentation on the condition and minimal research. CFC International is the main organisation that will assist with research project to learn more and more about the condition.
The family Emma (mum) is doing 10km in Round the Bays and Kere (dad, Blake (brother, 9) and Jenna in her wheel chair are taking part in the Wellington Round the Bays to help raise money for CFC International
Other page links
Latest donations
Who's involved?
