Support Charge Syndrome

CHARGE Syndrome is a recognisable (genetic) pattern of birth defects which occurs in about one in every 9,000 to 10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child.

Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. Most have hearing loss, vision loss, and balance problems which delay their development and communication. All are likely to require medical and educational intervention for many years.

The CHARGE Syndrome Association of Australasia hosts a bi-annual conference for families and professionals. These are very important to individuals with CHARGE and their families as they are able to connect with each other and hear from a number of international speakers many of whom specialise in CHARGE syndrome.

The next conference is in Melbourne in May 2018. Your donation will be gratefully accepted and used to subsidise travel costs for speakers and attendees of the conference. Often cost is a barrier to attending these conferences so please donate, NZ Charger's and their families thank you for your kindness!