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Caring for Coco

  • Thank you!

      11 December 2017
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    Hi! Dear friends, family and well-wishers

    We have decided to close this page as we have reached the goals we were aiming for.

    We would like to express our absolute gratitude for all your donations - and the donated SLT sessions!

    Thanks to your generosity we have been able to:

    · make our house more "Angel-toddler friendly",

    · pay for extra conductive therapy

    · employ a carer support to assist with Coco’s learning

    · Enrol Coco in 2 days a week of day-care to assist with her learning and social skills

    · Provide her with nourishing organic food

    · Pay for mineral and vitamin supplements

    · Pay for extra carer hours

    And Kim has been able to take time off work for the 4 hospital stays we have had over the last few months.

    Coco update:

    Coco is a happy and engaged 2 year old now. She loves being around family and friends and loves painting, watching her brother build his amazing Lego inventions and exploring her world.

    Health wise, Coco started having febrile seizures a few months back triggered by pneumonia and an ear infection. These have since become more frequent, so we are trialling some anti seizure meds.

    She has also recently had a videofluroscopy (a moving xray) that confirmed she is high risk of aspiration and pneumonia and has some scarring on her lungs, which we are keeping an eye on and in discussion about whether we need a feeding tube or not.

    So as you can see we are on a very different path now than from a few months ago!

    Scary sounding stuff aside, we are all doing great, Coco is thriving developmentally and socially and is such a delight to be around. Our house is always full of laughter and you've all contributed to a way less stressful few months, so thank you!! xxx Jo, Kim, Coco, Hemi & Stevie

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  • Happy to be back to it

      19 October 2017
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    Well, wow, what can I say. We've had a rough couple of months that's for sure!

    Seizures associated with pneumonia, fevers and an ear infection have been haunting us on and off and we've had lots of hospital visits and 3 admissions!

    Your donations have been really valuable in helping us through this time. Coco has been seizure free for almost 2 weeks now and was stoked to be back at music therapy last week (pictured here with her therapist Jen who she loves dearly). <3 <3

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  • Famous!

      30 August 2017
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    Pretty cool that when I was in hospital the issue of Woman's Day that I am in came out!!!

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  • A fright for mum and dad

      30 August 2017
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    Wow what an exhausting month, thank goodness spring is just around the corner!

    Winter brought me a wee battle with pneumonia and ongoing seizures which led to a week long hospital stay.

    Thanks to your generous on-going donations both my mum and dad were able to stay with me the whole time and I had a stable recovery - back to my happy cheeky old self. Thank you xxx

    PS the nursing staff, play specialists and Drs at Starship Gen paeds and Nuero wards were sooooooo amazing <3 <3 <3

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  • Safety First!

      4 August 2017
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    Getting the gates up! Now I can play outside without escaping or falling down the stairs ✔️ Thanks guys!

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  • Play Care

      21 July 2017
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    Hi friends, whanau, supporters!

    I have started attending my new kindy 2 days a week and boy am I loving it! I'm already learning heaps by observing and interacting with my peers, like how to get in to the sandpit without faceplanting and even sitting with them at the table for Kai time. When mum pulls up for drop off I'm bursting out of my car seat with enthusiasm. Bossing it! Thank you so much for your continued love, well wishes and support. It really truly is making a difference. Xxx

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  • Special babies music and fun group

      29 June 2017
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    Here I am at my fortnightly music and fun group being very serious about bubbles and my fine motor skills. Check me out isolating my pointy finger! #milestones 👆

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  • Increasing my independence

      27 June 2017
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    Hey mates! Here I am this morning being cheeky in my conductive therapy session. This is where I learn how to coordinate my movements and aim to gain greater independence through the use of repetition using games, music, physical and other activities in weekly 1 on 1 sessions.

    THANK YOU for your support xxx

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  • 👣 step by step 👣

      16 June 2017
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    Oh my goodness you guys! My whānau and I are absolutely blown away by your generosity.

    Thank you. 😇 Aroha nui xx

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