Connor needs life saving treatment in Melbourne
Connor needs life saving treatment in Melbourne
Christchurch, Canterbury
Connor is 7 years old and was diagnosed with Acute Lymphoblastic Lymphoma with the Philadelphia positive chromosome at the age of 4 in August of 2021.
Connor has now had a second relapse which has been confirmed last week, and has come back very fast.
Connor will now hopefully get approved for CAR T cell therapy in Australia where he will need to travel to with his mum. Connor's care team have said CAR T is the only remaining option or Connor will be switched to palliative care.
***********Connor's Journey***********
Connor completed months of chemotherapy and radiation at Christchurch Children's Ward and a surgery to remove lymphoma in 2021 and 2022.
After nearly 2 years of treatment Connor had a relapse which split his family apart with Connor needing to be in Auckland's Starship hospital to have a bone marrow transplant.
In May of 2023 Connor relapsed and completed more chemotherapy at Christchurch Children's ward then flew to Auckland to complete full body radiation, further intensive chemotherapy prepping Connors body for the bone marrow transplant at Starship in August 2023.
Connors's bone marrow transplant seemed to be a success and Connor had returned to school and had been enjoying spending time with his friends and learning.
At the end of April 2024 after an ultrasound, Connor's care team were concerned with what they were seeing and tragically bone marrow tests have now confirmed that Connor has now relapsed for a second time.
Lisa Chalmers' involvement (page creator)
Connor's mum is a dear friend of mine
Use of funds
Apply for high health funding for treatment for CAR T. Accommodation costs for Connors mum during treatment, travel to Melbourne for both Connor and his mum.
Other page links
Latest update
Connor has received his 2000th bead 29 June 2024
Apologies for the lack of updates on Connor. We have not had any news as to an updated time frame that Connor will be heading to Aus. Connors mum has been in regular contact with the Hospital but unfortunately, even although his treatment has been marked urgent, they still dont have a date. This is understandably incredibly stressful for Connor's mum and dad as Connor needs to have his deasease below a required level to proceed with treatment. The longer time goes on whilst waiting for a treatment date, the riskier it becomes with Connor' current health level continuing.
Latest donations
Who's involved?
Help Fundraise
You can help fundraise to have your own page that raises money directly for the beneficiary.Page Q&A
One question has been asked already. Check it out and ask yours here.Any concerns?
Report this pageThank the donor
Your message will be displayed on the page and emailed to the donor.
Your new message will also be emailed to the donor.
Saving a blank entry will delete the current comment.