Connor needs life saving treatment in Melbourne
Christchurch, Canterbury
Connor is 7 years old and was diagnosed with Acute Lymphoblastic Lymphoma with the Philadelphia positive chromosome at the age of 4 in August of 2021.
Connor has now had a second relapse which has been confirmed last week, and has come back very fast.
Connor will now hopefully get approved for CAR T cell therapy in Australia where he will need to travel to with his mum. Connor's care team have said CAR T is the only remaining option or Connor will be switched to palliative care.
***********Connor's Journey***********
Connor completed months of chemotherapy and radiation at Christchurch Children's Ward and a surgery to remove lymphoma in 2021 and 2022.
After nearly 2 years of treatment Connor had a relapse which split his family apart with Connor needing to be in Auckland's Starship hospital to have a bone marrow transplant.
In May of 2023 Connor relapsed and completed more chemotherapy at Christchurch Children's ward then flew to Auckland to complete full body radiation, further intensive chemotherapy prepping Connors body for the bone marrow transplant at Starship in August 2023.
Connors's bone marrow transplant seemed to be a success and Connor had returned to school and had been enjoying spending time with his friends and learning.
At the end of April 2024 after an ultrasound, Connor's care team were concerned with what they were seeing and tragically bone marrow tests have now confirmed that Connor has now relapsed for a second time.
Connor's mum is a dear friend of mine
Apply for high health funding for treatment for CAR T. Accommodation costs for Connors mum during treatment, travel to Melbourne for both Connor and his mum.
Day 60 tests upcoming 6 November 2024
Next week we have our day 60 tests including bloods, bone marrow test and a monthly infusion to help immune system. Since coming back Connors bloods have been dropping significantly and has managed to pick up some community bugs. He has had a few very down weeks but started to pick up. Today we have been threading up some beads and we are now at 2226 and counting. Fingers and toes crossed for some awesome results next week :) please put out those positive vibes
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