Connor needs life saving treatment in Melbourne
Connor needs life saving treatment in Melbourne
Christchurch, Canterbury
Connor is 7 years old and was diagnosed with Acute Lymphoblastic Lymphoma with the Philadelphia positive chromosome at the age of 4 in August of 2021.
Connor has now had a second relapse which has been confirmed last week, and has come back very fast.
Connor will now hopefully get approved for CAR T cell therapy in Australia where he will need to travel to with his mum. Connor's care team have said CAR T is the only remaining option or Connor will be switched to palliative care.
***********Connor's Journey***********
Connor completed months of chemotherapy and radiation at Christchurch Children's Ward and a surgery to remove lymphoma in 2021 and 2022.
After nearly 2 years of treatment Connor had a relapse which split his family apart with Connor needing to be in Auckland's Starship hospital to have a bone marrow transplant.
In May of 2023 Connor relapsed and completed more chemotherapy at Christchurch Children's ward then flew to Auckland to complete full body radiation, further intensive chemotherapy prepping Connors body for the bone marrow transplant at Starship in August 2023.
Connors's bone marrow transplant seemed to be a success and Connor had returned to school and had been enjoying spending time with his friends and learning.
At the end of April 2024 after an ultrasound, Connor's care team were concerned with what they were seeing and tragically bone marrow tests have now confirmed that Connor has now relapsed for a second time.
Lisa Chalmers' involvement (page creator)
Connor's mum is a dear friend of mine
Use of funds
Apply for high health funding for treatment for CAR T. Accommodation costs for Connors mum during treatment, travel to Melbourne for both Connor and his mum.
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Latest update
Update 5 October 2024
Connor has had his cells returned and is handling it rather well except the odd side effects. His eyes are extremely sensitive and seems to have a few memory issues which we have been assured will go away. We have our day 30 tests next week and with that we should find out level of disease and also If the cells are working. Sorry for delay in update unfortunately we have had some family emergencies outside of this to handle.
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