A Single Injection to Save a Life - Updates

Together, we stand strong!

23 March 2025

Hi Everyone,

I just wanted to take a moment to share a quick update on what's been happening. First of all, WOW! The response has been nothing short of amazing. We’ve been truly overwhelmed by the outpouring of support and generosity we’ve received. Your kindness has been incredibly encouraging, and it’s giving us the strength and motivation to push even harder toward our goal.

Thanks to all of you, we've been able to get the word out, and we’ve appeared in places like the NZ Herald https://www.nzherald.co.nz/nz/sialidosis-therapy-kiwi-siblings-fundraise-for-injection-against-disease-that-killed-brother/XRBNLH6SMNDOJECLHMWHQWIX7E/ , stuff.co.nz, local newspapers, as well as on Facebook, LinkedIn, and more. It's been so uplifting to see people rallying behind the cause, embracing the spirit of "Kia Kaha!" – standing strong together, even when the odds feel overwhelming.

As we’ve now surpassed $31,000, please know that every dollar you’ve so graciously chosen to give will go directly toward gene therapy that will not only help us, but also future patients with Sialidosis. We are incredibly grateful for each and every one of you.