Desperately seeking support for our beautiful sick baby Eva
Please help us treat and care for our baby Eva, who has the very rare condition - Pierre Robin sequence.Auckland
Half a year ago I came to New Zealand to study. I brought my pregnant wife with me, because I didn't want my baby to be born without me. By that time Yulia had been pregnant for 4 months.
We went through 4 ultrasound scans in Auckland during her pregnancy. Unfortunately, none of those showed that my baby has a very rare genetic disease - Pierre Robin sequence. If we had known, we would have gone home before Eva was born.
Babies born with Pierre Robin sequence are unable to breathe by themselves. They need a Tracheostomy which is connected to a ventilator, to breathe. Eva also has an underdeveloped lower jaw, and thumbs, and is unable to bend or rotate her arms.
When she was born on 28th July 2019, she was immediately admitted to Starship, Auckland Hospital. My baby Eva remains dependent upon a ventilator and has to stay in Starship for another 4 - 9 months until she can be safely transferred to my home country for further treatment, including surgeries and rehabilitation.
Our current international insurance doesn't cover any services provided by the hospital. So far, my debt to Auckland Hospital is around $NZD 300 000, and is still growing. We expect the cost of her continued care to rise to as much as $NZD 500 000.
I am on a student visa and I cannot work full-time. This means I am not able to pay off this debt and provide my family with reasonable financial support.
Our family is totally desperate. We are begging you for any kind of help which will be gratefully appreciated.
Use of funds
All funds will be used for Eva's treatment and paying off our impossible debt to Auckland Starship Hospital.
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This page was created on 4 Oct 2019 and closed on 4 Jan 2020.