Diagnosed Ehlers Danlos Syndrome now Life threatening vascular compressions, please help me raise funds for surgery in Germany.
Vascular compressions are life threatening. Please help me raise funds to take Caitlin to Germany for surgery. Caitlin has EDS
Havelock North, Hawke's Bay
Please help me save my daughters life.
Recently diagnosed with vascular compressions this is a serious complication and is life threatening.
Caitlin ( Bean) is now 22 years old . Her life is hard at every turn something more goes wrong.
From age 11 she has been hospitalised with severe stomach pain
Caitlin lives every day in pain
Barely able to attend school due to Illness from year 7, I homeschooled Caitlin from year 10.
A promising ballet dancer competing from 4 years old it was a devastating decision to stop aged 14 as she was constantly in hospital and daily in great pain.
5 years ago subluxations, dislocations and terrible back pain began along with nausea and vomiting and fainting.
After seeing a rheumatologist Caitlin was diagnosed with Ehlers Danlos Syndrome of classical phenotype along with PoTS.
This has all taken a huge toll on her mental health in which depression, PTSD, ADHD, Autisum and chronic fatigue have been diagnosed.
The vascular compressions diagnosed consist of-
MALS
Nutcracker
May Thurner syndrome.
Frighteningly these are life threatening and travelling to Germany for surgery is vital for improving and potentially saving her life.
Tragically Caitlin and her brothers lost there amazing Dad to cancer last year and I lost my husband and best friend.
I can’t do this alone and am asking everyone to share our story to raise funds and awareness of this condition.
If we are unable to reach this goal any money raised will go towards ongoing medical costs.
Thankyou in advance
Leanne Umbers' involvement (page creator)
I am Caitlin’s Mum and appreciate any donation given
Use of funds
Funds raised will contribute towards travel, accomodation and ongoing medical appointments, scans and treatments.
If we are unable to reach this goal any money raised will go towards ongoing medical costs.
Latest update
Thankyou “Latteys” 16 July 2024
Thankyou so much Latteys Engineering for a wonderful night.
Great food, excellent company and amazing auctions.
Matt Watson was awesome as was my brother-in-law Dave Umbers who was MC and auctioneer.
You have all helped us get to Germany.
4 weeks tomorrow we leave for Germany and it can’t come fast enough.
On our final push for fundraising, please continue to share our story, we are so grateful to everyone for your help and support.
Latest donations
Thankyou very much for your donation and kind wishes We are really grateful for your support
Thankyou very much Susan, your donation is really appreciated. Your right, it certainly feels closer to going. All the best with your health, this EDS is not easy.
Thankyou so very much for your donation and message of support. We appreciate you helping us.
Thankyou so much for your donation helping us get to Germany. Your support is appreciated
Thankyou so very much for your support and donation. It’s Really kind of you to help us and we appreciate it.
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