Taylor Barnes Heart Journey

10th July: Taylor had her first open heart surgery. She now has a berlin heart machine; this helps her own heart to pump blood round the body. This has been put in to help her left ventricle and may need another one for her right, time will tell. It's a bridge to heart transplant and she is the third child we know of to have this in New Zealand ; but there are many other children living on this around the world. Taylor and Leanne have been living in hospital now since around the 22nd May, they will be living there now until she gets a new heart.

Thank you so much for all your support, love and kindness. It means so much and helps us all through the bad times.