Expected to die by 2 years old from aHUS, at 35, Rebekah has a new liver, kidney, and freedom from a dialysis machine! But also expenses.
Hastings, Hawke's Bay
aHUS is a rare genetic blood disorder that shredded Rebekah's kidneys. She was on peritoneal dialysis until age 19, at which time she had a kidney transplant because aHUS finally seemed to be dormant. But then it wasn't. So three times a week, at about eight hours apiece, her blood would run through snakes of tubing and a beeping machine the size of a small family fridge, and she would be anchored to several square meters of space. Such is haemodialysis.
Rebekah's particular conditions made it much harder than normal to find matching organs—particularly because she needed both a liver and kidney. By last year, she was resigning herself to the possibility it may never happen.
Yet in the dark chilly beginnings of the 6th of March, she flew by Air Ambulance to receive the liberating organs that ticked every box!
Thoughts of her future are exciting! In her present, however, she and her husband Shanon are dealing with expenses that don't cease to exist just because a fairy tale ending also keeps its characters away from work for a while. Rebekah will need to be in Auckland for a few months. At time of writing, Shanon is with her, supporting her recovery.
Living expenses are rough for almost everybody. They're probably rough for you, too. We understand. To those who are willing and able, your donation toward helping Rebekah and Shanon with some of theirs during Rebekah's recovery period, would be accepted with much appreciation and gratitude.
I am Rebekah's sister (as well as next-door neighbour, which is factually awesome), and am making this page on her behalf. Donations will be paid directly to her and Shanon.
Funds will be spent on living expenses incurred while they're away from work—obviously, Rebekah can't work because she's been sliced and spliced for functional upgrades. And Shanon is away from work, while he is with her.
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