Losing my mobility and Independence because of Ehlers-Danlos 🦓

Hey everyone who is following my journey,

I have just spent 3 and a half days in hospital, I went in for my prolasped bowel getting really bad and causing extereme pain, high temperature and very high heart rate.

I got admitted to the general surgery ward, not because of my of my bowel alone but because they found my crp (c reactive protein) and white blood cell count were extremely high which indicated some kind of virus.

I was administered I.V antibiotics and alot of pain medication over the couple of days I was there and my levels came down a little but still remains high. I'm on a 14 day at home antibiotics treatment plan while I await my colonoscopy.

My mobility has taken a hit because the virus is quite powerful (the pain,temps and dizzyness is what sent me to hospital on the recommendation of my GP). I'm unable to walk far before my body wants to give out and I feel as though I'm going to pass out. My EDS is taking a huge hit, all symptoms are intensified and prolasped bowel is unfortunately another co-morbidity of Ehlers-danlos.

I'm contemplating getting a wheelchair on hire until I can afford the 400+ to purchase one. (I'll be what's called an ambulance wheelchair user-only when needed on bad days).

I'm hoping this antibiotic treatment works as I'll be back in on the I.V souloution. But for now I wait for corelectal team to be in touch about surgery. And what plan we have going forward. (They are still finding the cause for virus as all swabs and tests were clear for infections).

Thanks all for being here with me