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ELIJAH 24week Baby

  • Updates from Elijahs Journey fb page

      22 August 2021
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    If you want to see more about Elijahs Journey feel free to visit the facebook page "Elijah's journey"

    Latest updates as at:

    21st August

    Elijah is now 1.174kg 🥰

    The night before last he had a bit of a rocky one,and needed his CPAP pressure put back up.

    Today they lowered it again and he seems to be coping well 💕

    He has 2 more days nil my mouth ( has completed 8...don't know how he does it,I know I'd be HANGRY 🤣) and then they will x-ray his Tummy and re-access feeds 🤞

    Overall he's doing really well, just what he should be doing 💕

    Hemaglobin is low so will be expecting another blood transfusion in the coming days

    19th August

    Hello everyone ❤️

    Today I had my CPAP pressures lowered to a 8 and I'm tolerating it so well! It's a bit challenging to inflate my lungs all on my own but I will get there ❤️

    I'm weighing 1.103kg 💪 trying to pile on the weight so I can get closer to home to my daddy, siblings,and grandparents.

    I'm still nil by mouth due to my tummy,but I'm feeling much better 🤗

    Mummy and I just had 6 1/2 hours of kangaroo cuddles so now I'm feeling very relaxed, daddy called and spoke to me via video call while we had cuddles,it felt like he was just next to me, was so comforting to hear his voice ❤️❤️

    15th August.

    It's been confirmed Elijah has NEC..he will remain NIL by mouth until further notice for his gut to rest.

    When they did his x-ray they noticed his heart was enlarged,upon further investigation today they found he has pericardial effusion around the linning of his heart.

    Poor baby is in the wars atm 🥺

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  • ELIJAH IS IN THE 1kg CLUB

      13 August 2021

    Day 37 for Elijah ❤️

    Day 48 for me.

    Elijah is doing well, today he is getting another blood transfusion as his levels are low and he is starting to be rather eventful.

    He is now 980grams! Almost almost at the 1kg mark 🎉

    He's on 13ml feeds with full HMF now..these feeds are now being put through the pump over 45minutes as he's struggling with feeds and drops his oxygen & heart rate lots. He's also been having issues with blood aspirates again which they are keeping a eye on again.

    We thank everyone for their continued support and donations to our give a little page which is helping with the costs this predicament has put us in and are extremely greatful to everyone! Please feel free to share the link to get the word out their, in situations like this it is such a weight lifted ❤️❤️❤️

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  • Thank You and Elijahs Journey

      18 July 2021
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    Message from Maddie and Zanye.

    Thank you to every single person for your generosity and support though this rollercoaster of emotions and watching our baby boy show us what real strength looks like, I want to take this opportunity to say how grateful we are for you incredible humans helping and supporting us in this crazy time. For all your kind words and motivation , the prays from all over the world , the food our community has teamed up to make for our family and kids at home and your generous donations to our give a little page , thank you and god bless.

    You can follow Elijahs progress on fb @elijahs journey

    Update on the 16th july.

    Little man has just had another echocardiogram on his heart done to check his PDA (valve open in his heart) which hasn't closed after 6 rounds of medication,he is on his 2nd dose of a new medication but the scan unfortunately isn't showing any change...yet! They will rescan on Sunday in the hopes it is closing a wee bit or at least not stealing blood from where it shouldnt be and then will reevaluate extubating him ❤️

    Photo featuring his first tummy time 😍❤️

    Day 12- 25+4 weeks= Daddy's first cuddle 😍

    Elijah loved his cuddles with his daddy,he was incredibly stable,so much so they turned his vent down a wee bit ❤️

    Elijah's clearly been patiently waiting for daddy to come back before starting to open his other eye 👁️ 🥰

    Down 19grams but that's ok! Still above his birth weight ❤️❤️

    Elijah just loves when his daddy is here 🥰

    Soon he is going to have another echocardiogram to see how the duct in his heart is doing and then they will reevaluate extubating him ❤️

    He did extremely well last night with his changed ventilation settings 🥰

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