You can see the pain he feels when he has to take a step.... that is the spasticity he feels everyday.
In a few weeks time he will have no more pain, no more spasticity. How amazing would that be on his body to not experience this every time he wants to move.
But this video once again just shows how determined he is to walk no matter how much pain he is in.💚💚
Over the past month we have been quiet on Ethan’s page while we patiently wait........
After making a decision 2 years ago to put Ethan forward for SDR surgery and take on the enormous task of fundraising for it, we have finally been given a surgery date at St Louis Children’s Hospital in America for the 10th January 2020!! 🤩🤩🤩🤩🤩
Excited and nervous are the feelings that come to mind! But overall a huge relief to get to this point.
As promised we will continue to share his journey as we take on the next big chapter of Ethan’s Wish to Walk!
Good morning, I heard about Ethan story on the breeze. I would love to purchase 10 bags please. They will make excellent Christmas gifts. Please confirm what I need to do.
Hi Kim please email donate@ethanswishtowalk.co.nz
Come support Ethan at his last fundraising event.
Comedy night will have lots of laughs , raffles , auctions and door prizes.
$5 drinks
Swimming has always been one of Ethans favourite therapies.
Each week he gets more and more confident to put his head underwater 💚💚💚 Look at that smile just before he goes in 🥰🥰
Bath time is Ethan’s favourite part of his evening routine. This bath seat by @Firefly has been a real game charger for us. Before mama had to go in the bath with him which meant less independent play time, but now he gets to splash around and by himself while being supported in the seat.
We start with a nice warm bath with epsom salt to relax his muscles, and lots and lots of splashing goes on.
Then normally he requests dad to do a model A car sound down the hallway 😆 .... followed by arnica oil massage. The oil massage also helps relax the muscles
Finally he is all snuggled up in bed with his sister reading him Thomas and friends (of course) 💚💚
Ethan’s been asking mum to help him walk a lot more.
His face truly shows how hard this “walking thing” is for him, but he is determined to do it and never gives up 👑👑👑💪💪
Throwback Friday
Ethan was 1 year old when he got his very first taste of standing without mama holding him.
I mean look at that face............. he was so excited to stand with no hands on him and he got to play with his toys standing upright 💚💚💚
Three days a week Ethan attends GlowKids Trust. Glowkids is a not-for-profit organisation that provides intensive, specialist programmes for children who have sensory and/or physical disabilities.
GlowKids show me there is light at the end of the tunnel,
They show me what Ethan is capable of......everyday
That gives me hope and with that hope comes courage and strength to keep trying.
When I watch this video and all my worries disappear in a second as I see our Thomas obsessed Ethan walking 💚💚💚💚
Inclusion....... to me it’s about teaching our kids that we don’t see others differently. It’s about treating people equally and building life long memories and friendships along the way.
As the mom of a differently abled child, I tend to avoid spaces and situations where I feel like Ethan won’t be accepted because he is not like other kids. But if I don’t show Ethan to the world, how can he be accepted and how can I teach other kids about inclusion???
💚💚💚💚💚💚💚💚💚💚💚💚💚💚💚💚💚
🌟🌟🌟🌟🌟🌟🌟🌟🌟🌟🌟🌟🌟
WE ARE EXCITED TO ANNOUNCE.....🥁🥁🥁
Ethan has officially been accepted for his wish to walk surgery in America!!!! We’re now on the waiting list to confirm a surgery date.
(Can he get any cuter )
2018 was the year we started Ethan’s Wish to Walk and decided to share his Journey with the world.
It's been approximately 12 months since we started Ethan's Give a Little page. To continue our fundraising efforts we will renew his page for a further 12 months with the goal of getting him to America for the surgery he needs to walk independently.
Ethan has been working hard after completing another intensive physio session in Adelaide over Christmas and New Years. With all the hard work he has put in we are now starting to see some of the results in his walking and core trunk muscles.
To everyone on this page thank you for following and supporting Ethan throughout 2018 and a special big thanks to all of the people who have helped Ethan and us as a family throughout 2018, you know who you are and we can’t thank you all enough.
Keep following his journey as we hope 2019 will be the year he gets his wish to walk.
Can’t be more proud of my handsome boy today 👑
He smashed out 3 hours of intensive physio with Therasuit Australia. I’m not going to lie, it’s not easy. With gains must come smiles, tears and exhaustion all in one go 😔😔
Learning to crawl on his hands and knees for the first time is tough, but hoping with the help of Chad from Therasuit he will able to crawl.
Now to keep this up for another 13 days, 3 hours a day, everyday........💚💚
