some news
27 March 2015I would like to say a huge Thank you to the amazing people that have donated so far. Your generosity is amazing. We have had a couple more hospital appointments. They are now referring to Auroras eyes as having a cobblestone effect which they haven't seen in children before. Yesterday she had an xray of her left hand this is meant to tell them if her bones are at the right size for her age. I spoke to a lovely lady on smiledial and she has us now looking into BVVL disease .Can't wait to get to starship to get some more answers .
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