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Fathers last chance in his Stage 4 Melanoma Journey / With heavy heart 💔 our hope is gone 😢Help us do everything we can 4 him

  • Amazingly strong but the struggle is tough 😢

      14 December 2024
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    Just a little update as I know you all care. Jason and family are taking each day as it comes - worried whether today will be the day. It is like living in a nightmare for all concerned as we all know what is inevitable - which makes it worse. Christmas has always been a happy time where our families get together but t none of us are looking forward to it this year. Whether Jason is here or not - it will be a very sad time for us.

    Would love to put a positive spin on this but we can’t. Times are really tough and we thank you all for caring and helping them throughout this hideous journey. Unfortunately the silly fun season isn’t like this for a lot of people out there. If we can be anything in life - Be Kind!

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  • Making memories

      16 November 2024
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    Just a short note to let you all know the family is trying to make the most of their time, day by day. It is limited obviously due to the decline of what Jason is able to do - but he enjoy rides in the car and getting out of the house. Couple of weekends ago Jason & family managed to enjoy a couple of nights at a beach Bach, although Jason is not up to walking on the beach - he enjoyed looking out to the sea and the beautiful sunsets 🌅 Jason & family also managed to meet the families latest edition Maddison who was 6 weeks old. The most cherished times are those spent with family and loved ones. It’s all these little things that mean the most. Thank you all again for caring and being part of Jason’s story. Always remember ~ Time is precious - waste it wisely!

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  • With heavy heart 💔 our hope is gone 😢

      2 October 2024

    Jason & family would like to advise that their hearts are shattered by this weeks update from their Oncologist. We were all soooooo excited that with all your love, kindness, care and generosity we got enough for one treatment of the combination drug.

    This excitement unfortunately was short lived - just like Jason 😢 Routine bloods & scans were done before the 2nd Keytruda (due today) along with the now funded drug from your generousity, could be given.

    Our world 🌎 has literally fallen apart. Although bloods looked good - Jasons brain tumours do not. They have hugely increased in size and are bleeding into his brain. We are more than devastated as we were told NO MORE TREATMENT - so his days are numbered (always were but drastically reduced) as we have been told it won’t be too long now.

    Thank you for sharing our hope for an extended life - cancer is devastatingly cruel. It does not effect one person - it affects all of those who love and care about the cancer victim.

    We are all in shock and numb. Together we will get through this and we are as sorry as you will be that your funding never got a chance. We as a family want you to know what we have raised will help the family financially with the final journey for Jason and take the worry and stress off everyday costs and expenses while Kylie & the boys navigate through their next chapter, which unfortunately is written in stone.

    You have made a difference to us as a family and we are all eternally grateful to you all 🙏

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    • 08/10/2024 by Kaye

      So very sorry to hear this devastating news. My thoughts are with you all

  • What’s happening at present

      20 September 2024
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    Woo hoo we are eternally grateful to you all as we can now at least get the first infusion of the ipilimumab drug which is the so called unfunded wonder drug to be used in conjunction with the funded Keytruda. The next infusion is due in approx. 2 weeks time.

    We didn’t manage it with the first Keytruda but excited that we can use when the next infusion is due. The Keytruda knocked Jason around a bit but pleased to say he is doing better each day, so slowly recovering ❤️‍🩹 from this. Wicked drugs for the even more wicked cancer 😢

    Luckily Jason is made of tougher stuff and is staying strong. We will keep fighting with of your support and help.

    You have all made a huge difference and the words Thank you aren’t nearly enough.

    We will keep you updated on things as we progress.

    Love from Jason, Kylie, the boys & extended family & friends 🙏

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  • Time is precious 💜 Waste it wisely

      16 September 2024

    One time I met a man

    Who only had a month to live

    And I asked him if he had

    Any advice that he could give

    He said “I wake each morning

    Knowing I am going to die

    So each day must remind me

    I am blessed to be alive

    You see, my life’s on countdown

    As each hour is unfurled

    I know the clock is ticking

    On my time here in this world

    But what you’re overlooking

    Is that it’s the same for you -

    You know that I am dying

    But forget that you are too

    So make the most of sunshine

    And go dancing in the rain

    And sing a little louder

    When your favourite music plays

    Notice nature’s colours,

    Savour everything you taste

    Stop waiting for tomorrow

    ‘Cause you’ve got no time to waste

    And could you say convincingly

    That you’d have no regrets?

    If just the next few days or weeks

    Were all that you had left?”

    And then my breath caught quickly

    When he turned to me and asked

    “Could you say that you died happy

    If this day had been your last?”

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  • 1st Keytruda infusion

      11 September 2024
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    Just thought I would update you all on where we are at, at the moment. Jason has had his 1st Keytruda infusion which seemed to go well. We have been told that we only have a maximum of 9 weeks to raise the funds for the ipilimumab drug otherwise it won’t be worth adding it to the mix. So time is of the essence so to speak. We would greatly appreciate it if you would care enough to share our families story. As huge as the amount we need to get this funding we will keep trying, as we know it will make a huge difference. If god forbid we can’t raise the funds needed widths funds received will help greatly with all medical and financial costs for the family of 5.

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