A Final Word from the family
Donna’s page closes on 17th April so we just wanted to say thank you to all those who read our information and/or donated to her fight.
The battle is ongoing and will continue until Donna goes into remission, but she has been told that so far her treatment is not working and it will likely be 2 or 3 years until she achieves this. Even then remission is unlikely. In the last few months Doctors have found another lesion in her brain, and she is waiting cardiology follow up.
In late February Donna had a car accident where her and her car came off second best. Donna suffered multiple breaks to her sternum, and has an ongoing concussion. This was compounded by her neurosarcoidosis, and she is working with a neuro-physiotherapist. Her healing is going to take time.
On her behalf we wanted to say how very grateful she is for the medical teams that support her. Her focus remains strongly on achieving remission and after almost four years is very much looking forward to the experience! Donna is also grateful for the support of all of her family, and friends, and their love, care and understanding, she couldn't do it without them.
Donna’s key wish was that people spread the word about sarcoidosis as there is still no cure. People often suffer in silence when they have a rare disease. Be kind and be informed.
Lastly, be well, be grateful, and love your life. We only have one.
