Fighting a rare and incurable disease
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August Update
31 August 2025 -
Family Video
28 July 2025 -
Video message from Donna
18 June 2025 -
Family Asking Help For Donna
19 May 2025Donna is a daughter to a very proud Mum and Stepfather, she is the youngest of three sisters, sister-in-law to two wonderful men and had a brother who passed away in 2024. Our own father passed away in 2002.
We set up the Givealittle page with the aim to help Donna fund alternative therapies to assist with her wellbeing. Also to assist with living and petrol costs for her two hour visits to the hospital where she gets her ‘standard’ treatments.
Donna is very grateful to the family for our support and love, which we are very happy to give her.
Unfortunately, Donna is still on a downward trail and that is her battle. We all wish we could take away her pain and win lotto to assist her – but that’s our dream only. All we can do is be there for her, to listen, to try to get a laugh and sometimes to cry with her (or when you hang up the phone after hearing her pain). In her words -“she hates this Shit”.
So far there have been some very generous donations given and these have been earmarked for new glasses, because her eyesight is deteriorating, and an Infrared Light Therapy - Heat Therapy Wrap. These are some of the many other alternative remedies for Donna to explore.
We all love Donna to pieces but we don’t have the funds to assist her so we are asking for help from everyone.
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The Fight Continues
9 May 2025Thank you so much to everyone who has read my story and/or donated to my page. Sarcoidosis has no cure and I will live with this for the rest of my life because of my disease now being chronic and progressive. Hopefully I may have some periods of remission - I haven't achieved that in my 3 years so far.
However, it is challenging for everyone diagnosed, and their families, chronic or not - spreading awareness will support understanding, and the drive for a clear diagnostic and treatment protocol, and hopefully a cure.
At this stage I am still hoping my new infusion (3rd dose on the 20th) will work, no change as yet. I continue to go
backwards mind and body, it just seems to be moving in all over. My eyesight has decreased a notch and I'm getting weaker - harder to carry things.
Some days are hard but I'm working to stay positive and find the solutions around the medical treatment. Everything has to fit together, I am finding some anti inflammatory options don't fit. However, I will keep exploring.
Thank you so very much, Donna ♥️
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