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Freya's life changing surgery

  • Going home!

      31 October 2023
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    Finally on our way home this week! Freya's final scans have been done and show surgery was a success with all compressions reversed. She is eating once more and energy is gradually returning. She no longer feels her previous leg and pelvic pain, or nausea on eating. Pain meds are gradually reducing too! Now begins rehabilitation with physio, oesteopath and gastroenterolgy appointments booked in the first couple of weeks. Thank you everyone who has helped Freya to 'get her life back'. We can't wait to get back home.

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    • 31/10/2023 by Allen

      Absolutely amazing young lady, so pleased you are on the way home and progressing so well. Love and all good wishes for a brilliant future Allen & Hazel xxx

  • One step at a time

      1 October 2023
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    Freya has left hospital and she is able to eat small amounts and walk short distances. Pain and nausea are being controlled as she rides the waves of recovery! Such a star - immensely proud of her courage and motivation.

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  • On two feet again!

      15 September 2023
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    Day two post surgery and there were some big wins today. I was able to sit up unassisted and then stand up.

    It was such a weird feeling to do something that was so simple four days ago and now requires a lot of energy!! But I did it and I feel a lot better having stood up and helped get that blood moving.

    Bring on the next week!

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  • Recovery begins

      14 September 2023
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    With surgery now behind her, Freya's journey back to health begins. We would like to say a massive thank you to everyone who has donated, sent prayers and get well soon messages. Your kind words offer support, encouragement and much needed comfort. The surgeons, doctors and nurses who make this surgery possible are amazing. Everything went as expected and follow up scans towards the end of October will confirm success of the procedure. For now, we have a two week stay in hospital as Freya builds strength to walk and eat again. We'll keep you updated.

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  • Diagnosis day.

      6 September 2023
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    Today I had my scans in Leipzig with Professor Scholbach, I am very grateful for his expertise and he diagnosed me with the following:

    Massive May Thurner syndrome, compression of the left iliac vein

    Severe Pelvic Congestion Syndrome

    Extreme Lordotic Curvature

    Severe compression of the vena cava

    MALS

    SMAS

    Disturbed duodenal peristalsis

    Complete compression of left renal vein (Nutcracker)

    4 collateral veins around the right iliac artery (you should only have one)

    Possible Bornavirus (further testing needed)

    It feels relieving to finally have some answers and someone believe my pain is real. He was shocked at how severe my pelvic congestion was and just the amount of blood pooling around my uterus. It was also reassuring to discover why I am unable to eat more than five pretzels or a few mouthfuls of food.

    Now we wait for the 12th of September for my surgery! Feeling a little anxious but I am ready for this journey.

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  • Off to Germany!

      9 August 2023
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    Some final tests including a gastroscopy and colonoscopy done. A CTA scan was also sent off to Germany where the surgeon could finally give Freya a diagnosis. She has been diagnosed with MALS, SMAS, nutcracker syndrome and left ovarian vein dilation. However, more may be discovered with specialised scans in Germany. Her surgery is planned for the 12th of September and we fly out on the 2nd of September. Thank you to everyone who has helped on our journey.

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