Good news
3 September 2018****UPDATE FROM THE FAMILY****
"It's been a roller coaster week. Toby's scan on Monday showed progression on all sites which meant he was no longer eligible for CAR T-cell therapy at the NIH. It was a tough couple of days waiting to hear back from a couple of other places but, thanks to a lot of hard work from Toby's oncologist, he has been accepted by Seattle Children's Hospital for the same treatment, but self funded. He needs to be well enough to travel so is undergoing 4 days or radiation therapy to try and shrink the tumours. The cost of Toby's treatment is extremely high and we are incredibly grateful to family, friends and supporters who are making this possible for Toby."