Maggie Ngatai needs help funding a new wonder drug cancer treatment which can buy her more years with her young daughters.
Auckland
Everyone who knows Maggie loves her sweet spirit, caring and generous nature, and natural positivity. She was diagnosed with breast cancer in 2020, the day before her daughter's fourth birthday. A dedicated mother of two girls, she set about immediate treatment with chemo, surgery and radiation, and after 12 months of treatment went into remission. A year later the cancer returned in her neck and has now spread to lesions in her brain, which have caused seizures and affected her mobility - though luckily her thinking and speech is not affected. Maggie can no longer manage moving around her house so she is now living with her mum who can provide full-time care. Oncologists have recommended a new wonder drug combination known as TDXD (Trastuzumab deruxtecan), which is currently unfunded and very expensive - but is seen as the best option for stopping the spread of the disease and giving quality of life.
The family has used up their savings and are looking at remortgaging a house to help fund treatment. There is hope that the government may fund half the drug, but even so, Maggie and her whaanau are looking at costs of at least $175,000 for the first year of treatment ($3,330 per week).
Maggie's two young daughters are now aged 7 and 11. Every extra day with them is precious and she remains focused on being the best parent she can be. Maggie is usually the first to help others, but now she needs our help to give her extra time with her girls. Any donation will be much appreciated.
I am a friend and former colleague of Maggie's.
To pay for the miracle TDxD (Trastuzumab deruxtecan) drug combination which costs $3,300 per week, as well as administration costs, scans, specialist imaging and any other costs associated with Maggie's treatment and care.
Happy new year 13 January 2025
Ngā mihi nui o te tau hou! Happy new year!
A belated, but happy 2025 update: is that TD-XD, the drug Maggie is being treated with, is now publicly funded! Maggie had her first treatment last week back in the public health system!
It’s been a real rollercoaster, as Pharmac’s original proposal to fund the drug, would have excluded Maggie from being eligible (because of another drug she’d been on previously).
Thankfully, during their consultation Pharmac took on board feedback – from people like the Breast Cancer Foundation, clinical experts and affected people like Maggie – and removed this eligibility criteria. In December they announced their final decision to fund TD-XD – and Maggie is eligible!
We are incredibly, deeply grateful for all your support, which has got us to this point, and enabled Maggie to access this treatment in the meantime. Not only the financial support, which was amazing, but just as important, your emotional support kept us all afloat. It is hard to describe how much your kindness and generosity means. E kore e mutu ngā mihi ki a koutou!
Maggie spoke out throughout this experience about the need for better and fairer funding for breast cancer treatments. Eg, here: https://www.rnz.co.nz/news/national/535981/cancer-patient-s-relief-after-restrictions-removed-for-incredible-new-drug
Lots else has been happening. Will write another update soon, but wanted to share this great news. Lots of love and best wishes to you all for 2025 xx