My daughter Rebecca has a rare opportunity to meet with one of the few Doctors in the world specialising in her rare disease.
Wellington
My daughter Rebecca has a rare opportunity to meet with one of the few Doctors in the world specialising in her rare disease.
Rebecca was diagnosed in 2010 at age 32 with a rare disease called Dercum’s Disease (Adiposes Dolorosa). This rare disease has completely changed her life, leaving her unable to work. Sadly due to the rare nature of this disease doctors with knowledge in how to treat Dercum’s in New Zealand don’t exist. While Dercum’s has no cure and scarce viable treatment options, the opportunity to see a doctor specialising in her condition may open doors to further treatment options and possible further diagnosis.
Dr Karne Herbst will be in Melbourne to see patients and speak to both doctors and Patients in October 2015. I am hoping to raise $3,500.00 to cover airfares, accommodation, food and travel around Melbourne, for both of us, and (by way of fees to see Dr Herbst) a donation to the Dercum’s research fund.
Link: Dr Herbst's Information about Dercum's Disease
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