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Amazing Amy Grace

  • Thank you for your support this page is now closed.

      1 April 2013

    To all those who have contributed to the Givealittle fundraising campaign for Amy Carr, thank you for your support. The campaign is now closed and all funds have been transferred directly to Amy's bank account. Below is a letter from Amy regarding the remainder of her treatment outlining the specifics for utilising the funds raised thus far. ""Dear amazing friends and family and supporters, I'm writing to you for two reasons. The first, is to thank you from the bottom of my heart for all your love, support, and give a little donations. These funds will have the most positive affect on my life, aside from good old fashioned l.o.v.e. I cannot thank you all enough. The second reason for writing is to outline how I would like to implement your financial support, after the initial thoughts of going to the Gawler Foundation has changed. Some of you may be surprised by this news but I hope you'll see that my new carefully considered plan of action is what is best for me in battling this cancer. Of course I haven't made this decision lightly, this is about life and living. The two reasons I am not going to the Galwler Foundation are, On my return I will not be able to afford the new lifestyle that Gawler promotes as all the 'Give a little' funds would have been spent on the retreat. Being away from Nico for 10-12 days is now seeming just too long for the both of us. I will explain these reasons in further detail now. During a recent radio interview Ian Gawler (Director of the Gawler Foundation) said gmy patients heal themselves, we give them the tools to get there. That being diet, exercise and meditationh.I thought this was interesting and discussed this further with a Doctor of Psychology who was at one time a hospice nurse and has been to the Gawler foundation three times. She said gYes Amy, that's the basic gist of the treatment there. They get you away from your normal world for 10 days and teach you how to meditate a new lifestyle diet and how to alleviate stress in your lifeh. She said that the hope is that you continue this new lifestyle on your return to the normal world. This is all sounds excellent and the Gawler Foundation has remarkable success with Cancer treatment however his 'new lifestyle' is essentially beyond my financial means as a solo parent, well the initial outlay is. It's a catch 22, I either spend all the funds on going to the Gawler Foundation or I spend the funds establishing what's required to live this new lifestyle to prevent cancer recurrence I will outline the costs of establishment below, and am thinking this is me! The Oscar juicer machine (a particular type of juicer which is best for juicing as it doesn't oxidize the vegetable juice) $550.00 from Harvest Organics or the supplier. Total cost $550.00 Juicing vegetables cost around $50 - $70 a week this also includes Wheatgrass. I will set up a six month credit with Harvest, a total of $1200.00. Total cost $1200.00 Seeing a Naturopath, Roseanne Sullivan, who specializes in Cancer treatment (cost) $200.00. Then supplements will cost around $250.00 a month. I will set up a credit for 6 months supply $1500.00 Total cost $1700.00 Attending three private Yoga therapy sessions with Gabrielle Matches (cost) $350.00. She will advise me on the particular style of Yoga I should be doing in regards to Cancer treatment she will also teach me mediation. Yoga membership costs about $600.00 for six months. Total cost $950.00 I will be seeing a Naturopath who specializes in Woman's Health, Diets and cooking classes. I believe the initial consultation is $160.00. The cooking /nutrition classes are $100.00 every couple of months. Total cost $360.00 Counselling/Psychology/Kinesiology. I can see government funded Psychologist for a few sessions I have to pay for my own. I would rather see a counselor or Kinesiologist and they cost about $120.00 a session. I am hoping from a mental health perspective that 5 ? 8 sessions will get me where I need to be. Total cost, around $800.00. Filtered water jug (alkalizing for the body) $130.00 Total cost of all interventions $5690.00 and the total amount from the 'give a little' account is $5400.00. You can see that it's an expensive lifestyle to establish and quite beyond my capability at present. Mostly what I've outlined would have been recommended by the Gawler foundation on my return to NZ and I would not be able to afford it. It feels like I would have gone away to learn everything but on my return there was no way I could live it which seems really redundant to me. None of the aforementioned treatment is meant to be an alternative to western medicine, its actually meant to support it. Hopefully the only western medicine I will be taking is Tamoxifen (for five years) which helps in stopping my body producing estrogen which then feeds my particular type of Cancer. Tamoxifen has a 50/50 chance of working (along with numerous nasty side effects). The combination of Tamoxifen and my treatment plan should give me a best possible chance of a successful outcome! The outcome is to live with a healthy mind and body and recuperate well from the damage chemotherapy as done to my immune system. I wanted to give you all a really detailed explanation and outline for my Cancer treatment so you could see how seriously I've considered all alternatives and taken the bull by the horns in the decision for my recovery I feel is best for me. Once again I thank you so much for your generous donations, and am looking forward to some positive life changing experiences. Love and best wishes, Amy & Nico""

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  • Update for 14/12/2012

      14 December 2012

    This morning I spoke to Amy. Today is Day 3. Tuesday Amy went with Jess to have blood work prior to her Chemo appointment. Wednesday morning 10am Amy started her first round of Chemo where she sat in a room with 5 others while they intravenously pumped a combo of drugs through her body. Amy & Jess were both shocked at the young guys that were there having to go through it too. Cancer does not discriminate, young or old, rich or poor, black or white, man or woman...we can all be susceptible to this hideous disease. It was a hard time emotionally to sit in a room with strangers and undergo the treatment. They pump it through slowly so that they can manage any adverse reactions...ie the particular drug that Amy had, has a 40% chance of an anaphylaxis reaction. In Amy's words ""oh great, whats the bet that'll be me! the nurse assured me it was okay because I am in the best place should I have a reaction! That's comforting"" To finish off her 3 hour appointment she then had saline pumped through to filter out the drugs. This was her text to me on Day 2 (yesterday) 'Hi Hun, I have never been so sick in my life! Yesterday I thought I was going to die. Spewing every 20mins until 5am...no shit. I could not move. Nausea the whole time like I've never had in my life. Taste of chemicals in my mouth. My energy is 0. Can't get outa bed! I would rather give birth!!! Love ya! "" Today when we spoke she told me she has swelling in her knees and ankles (how she can swell I have no idea!) but apparently this is one of the side effects. She says her skin and eyes have that glazed appearance of someone sick & is pretty sure her white blood count is very low. Tomorrow she will be in at work, hopefully to take her mind off things. The Drs have given her anti-nausea drugs that help somewhat but have not so great side effects. Just before we hung up the phone, she said how much this is a huge emotional rollercoaster ride and how she didn't quite realise how huge this journey was going to be. Cancer patients have no choice in the matter, live or die, weigh up the risks, make your choice. She said it has made her have a closer insight into what John's (her Dad) friends Glen and Blair had to endure, what their families had to endure and that makes her really sad. At that time noone really had any idea. Its not until you really go through it that you have an element of understanding. Her heart goes out to all of those with Cancer and that have been affected by cancer in someway especially their family friends. Today she will relish in watching her precious boy Nico at home with Mandy and enjoy the moment. Chemo 1 down, 5 to go...

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  • Update for 14/12/2012

      14 December 2012

    This is a letter written by Mandy (Amy's Mum) Kiaora family and friends, Have finally got a moment to send out an email to you all with an update on amys progress, and to send you all very merry xmas love and thoughts. Its been a long road waiting to find out exactly what further treatment the oncology team feel is best for Amy. Finally two weeks ago after a meeting with the chemotherapy and then the next day a meeting with the radiation team, they have worked out a treatment plan for Amy. To date Amy has agreed with the team that she will have chemotherapy, due to commence December 12th. Amy has decided not to go ahead with radiation after long deliberation. The side effects from this far out weighed the results she was hoping for thru radiation. It was going to reduce her chances of cancer reacurance in the breast by 10-15%. This is a risk she has decided to take. We totally respect her descision. The percentage of cancer reacurance in women with breast cancer under 40 is a lot higher than most. She is wanting to tackle this small percentage through positive healthy relationships, love, life, laughter and a holistic well being approach. Although Amy has had 100% clearance from her surgeon. Due to the cancer being found in her lymph vessles they can not be sure that it has not travelled to the nodes and in other areas. The 15 lymph nodes tested were clear. However this is where the chemo will hopefully zap any stragling traces. Amy will start to loose her hair within 10 days of chemotherapy, so before that happens she has decided to shave her head. Many women choose to do this so that they dont experience their hair coming out in great clumps. Amys hairdresser has offered to come to her home to do this. She has a special day planned with nico to do this together, along with the rest of us. So loosing her hair is one side effect of her chemo. Amy will also experience, anemia (low blood count), feeling sick, fatigue, diarrhoea, mouth ulcers, skin rashes, high risk of infection. They say the first week is usually these symptoms and the second week her immune system will be low so she will stay clear of anyone who has a cold or a flu or any bugs of any kind. The third week you start to feel ok agin as your body needs to prepare for the next onslaught. She will also keep a daily dairy of her temperature or any chances or feelings she has while going through the chemotherapy. All this is over a five month period, with ongoing hormone therapy drugs for five years. After the five months Amy will have breast reconstruction and eventually have amazing beautiful breasts. The oncology team are amazing! So supportive and positive about the future. I remember the first conversation Amy had with her surgeon when she was first diagnose with cancer. I was with her and Amy said please be honest with me about everything! I am the sort of person who likes all my ducks walking in a straight line. And he replyed.......Amy, all your ducks are in for one hell of a rollercoaster ride. It will take a year, but you will come out the other side. And that is what it is! The hugest rollercoaster ride anyone could ever imagine. Amy has been amazing throughout the whole process!!! we are so proud of her. There are times when she falls appart and it just feels to huge, but the next day after a good night sleeps she picks herself up and gets going again with her amazing positive attitude and the inspiration of her beautiful son Nico. There is no doubt there is sometimes when Amy feels frightened, angry and sad. But that is largely about the unknown future of this disease. None of us can truly understand the full extent of how Amy feels about the emotional and physical scars cancer leaves behind. Amy has said there are no words to describe the changes this journey makes in your life. Amy is in this to survive! The long term prognosis is good. With the hormonal type of cancer Amy has had there is only an 18 -20% chance of this coming back. Once she gets to the 10-15 year mark without cancer she will have full clearance!! whooohooo. We would like to say a huge big thank you to you all! Your love and support, txt, phonecalls, cards, meals, boxes of veges, gifts, and listening to us when we have been needed to listened to has been amazing!!! We could not get through this without you all. Some of you know about the 'give a little' cause others havent heard yet. The give a little cause is a website that enable people to set up a fundraiser for anyone they feel the need to help. And that is excactly what a friend of Amys has done. Rachel has set up a fundraiser for Amy through 'give a little' to help amy get to the Gawler welness centre after her chemo has finished for relaxation and healing. Amy has spoken to her surgeon about it and he has said he knows many people who have been there and found it really helpful to get back on their feet from surgery and chemotherapy. If this is something you feel you would be able to give to, we would really appreciate it. All the info is on sight at: www.givealittle.co.nz/cause/GivealittletoAmyforGawler Now a big huge thank you to all of you who have already given to this! We are so blown away by your generosity. Thank you! And finally we would like to wish you all a very happy christmas and a wonderful new year. From all of us Carr family. Thank you to every one, you are all amazing!! Thats it for now from us. We will keep you updated. Much love Kia Kaha always Mands and john xxxxxxxxxxxxxx

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  • Update for 10/12/2012

      10 December 2012

    ""So they say...you should shave your head once in your lifetime."" Today was that day for Amy...9th of December 2012. Best wishes for Chemo this week Ames...we love you!

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  • Update for 23/11/2012

      23 November 2012

    Okie dokie people...Ames has had her Chemo and Radiation appointments this week. On the 12th of December she will have her first round of chemotherapy. We are well on our way to meeting our $10,000 target for Amy to attend the 11 day Gawler Foundation Healing Retreat with a support person. This will cover airfares and the 11 day stay and with a little extra she will be able to purchase books etc while she is there. So far we have raised 17% of the money needed from only 23 people - this is AMAZING - thank you all for your generosity. Lets see if we can hit 30% by Christmas - please spread the word - thank you for your support with this Also some of you may know Amy's family. They are working on a calendar at the moment to set up a support system for Amy during Chemo for things such as the daily basics like cooking, cleaning, washing etc...we have had some generous donations from different companies that have blown us away....If you are in a position that you are able to cook a meal for Amy and her family, please email me waihekedreamers@gmail.com and I will pass on your details to Mandy and John so that they can get in contact with you. Every little bit helps and your support means so much to Amy and her family. Thanks again everyone..until next time

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  • Update for 27/10/2012

      27 October 2012

    Wow everyone how amazing are you all. I have been texting Mandy & Amy updates of the fundraise and they are just blown away. Mandy's first reply was 'How are we going to thank them all' so typical of the Carr's. They have always given so much to people it is so nice to be able to give back to them. Bless you all - have a wonderful weekend x

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