#GlowUpShowUp for Rare Disorders Month

$1,558 donated
Given by 26 generous donors in around 5 months

March is Rare Disorders Month, and we are calling on Aotearoa to Glow Up and Show Up for the 300,000 Kiwis living with a rare disorder.

Wellington

March is Rare Disorders Month, and we are calling on Aotearoa to Glow Up and Show Up for the 300,000 Kiwis living with a rare disorder.

Why #GlowUpShowUp? The rare disorder community in New Zealand is currently being left in the dark. Unlike most OECD countries, New Zealand doesn’t have a national strategy for rare disorders.Rare Disorders Month is a chance for the 300,000 strong community of patients and their whānau, to rally together and call for urgency in the health reform they’ve been promised.

Living with a rare disorder isn’t rare – the size of the community is similar to that of a big city like Wellington. If you don’t have a rare disorder, then you likely know someone who does. And they need you to Glow Up and Show Up this Rare Disorders Month.

We are the advocacy and support body for the collective rare disorder community in Aotearoa. We rely on donations to continue to hold the Government to account on their promise to develop a national rare disorder strategy.

By donating this Rare Disorders Month, you’re helping to bring this community out of the darkness, and into the light. Your donation will go towards running our enquiries line, providing connection, guidance, advice and resources for 140+ support groups and representing the rare community’s voice at the highest levels to improve healthcare and wellbeing for people and their whānau living with a rare disorder.

Visit www.raredisorders.org.nz and @RareDisordersNZ to learn more.

About us

Rare Disorders NZ is the connector hub & collective voice for people affected by rare disorders and their families. We advocate for an equitable health system that works for the 300,000 Kiwis with a rare condition - around 6% of the population.

Use of funds

Your donation will go towards providing a place for the rare disorder community to turn to for connection, guidance, advice and resources.

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Latest donations

Michelle
Michelle on 02 Apr 2023
Fundraised by selling handmade bear soft toys
$100
Rare Disorders NZ

Thank you so much for your wonderful efforts raising money for Rare Disorders NZ!

Rare Disorders NZ
Alexander
Alexander on 02 Apr 2023
$250
Rare Disorders NZ

Thank you so much for your generous donation and support Alexander!

Rare Disorders NZ
Little Toppers
Little Toppers on 02 Apr 2023
Thanks for your efforts
Private
Rare Disorders NZ

Thank you so much for your donation and support!

Rare Disorders NZ
Guest Donor
Guest Donor on 02 Apr 2023
$50
Rare Disorders NZ

Your donation and support are greatly appreciated!

Rare Disorders NZ
GWD Motor Group
GWD Motor Group on 31 Mar 2023
Keep doing such great work for the community!
$92.50
Rare Disorders NZ

Thank you so much for your very kind donation and support GWD Motor Group!

Rare Disorders NZ

Who's involved?

Rare Disorders NZ's avatar
Created by, and paying to a verified bank account of, Rare Disorders NZ (Charity)
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A Registered Charity has legal recognition under the Charities Act 2005.
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Donations of over $5 are eligible for a New Zealand charitable giving tax credit.
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This campaign started on 2 Feb 2023 and ended on 30 Jun 2023.