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Healing for Mana - Fighting Cancer and LAM

  • 27 March 2017 : Our final update :o)

      27 March 2017
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    Good morning all! Our page reaches its time limit on 31 March 2017, and it seems fitting that Mana has given me an update she has written, which will be the final one.

    Thanks to everyone who has been involved ... bless you all. Tina xoxo

    Mana says ....

    There is a Samoan saying, “Ua mutia le ala,ua papa le fali”, I dare not attempt to translate for fear of failing to give these words its full credit. However, they are spoken by our orators and high chiefs to relay their gratitude to all who have come in answer at their time of sorrow or time of need. In our mother tongue, it is an expression of infinite gratitude.

    My mother and I, along with my loved ones wish to express our utmost thanks to all of you who have given whole heartedly to our Give a Little plea. Your generosity and love is remembered in our prayers of praise and thanksgiving.

    In the recent months, I have silently read all your loving and encouraging words, always always with tears. I apologize for the silence, it takes a lot for me to put my thoughts in writing. The overwhelming emotions I have felt throughout this journey, of pain, of sorrow, of hope, of gratitude and of love can never be fully expressed in mere words.

    Several months back I was an invalid forty one year old mother, bathed in bed by her own mum, like a child, yet unlike a child. My younger sister slept on the floor next to my bed so someone could hear my breathing through the night. My three year old nephew climbed into my bed to help me greet the day or to simply be my companion. I shut the rest of the world out, my strength to physically and mentally interact with people was robbed by cancer and Morphine was my solace. My curtains were closed, always. I had half heartedly given up on life.

    I have come this far by God’s grace and through the love you have shown here. Music now wafts from my room, my curtains are always open and I am dancing with my nephew. My children are laughing more, my husband too. My parents still have not stopped crying, as any grateful parents would.

    My response to treatment has been hailed as excellent by my oncologist. Considering I was a borderline candidate for treatment, I personally feel like a living miracle. God be praised!

    I am living on borrowed time, I know. If there is anything I have learned, it is to appreciate whatever time I am given. And I thank you from the bottom of my heart, for your love, your generosity and your humanity for giving me time…a priceless gift.

    Tina, thank you for loving me, like a true sister would. For making me laugh, for holding my hand from afar, for embracing me as one of your own. I would never have been able to do this without you. I love you my darling friend.

    Faafetai, faafetai, faafetai tele lava.

    Thank you, thank you, thank you all.

    God bless you.

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  • 20 Mar 17: Round 1, cycle 5

      20 March 2017
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    Malo lava to all! Well Mana is now up to round 1 of cycle 5 with her chemo, and so far, she is feeling good and looking gorgeous!

    The cumulative effects of the chemo have been some tiredness and a couple of infections which have been knocked out with some good antibiotics. Overall Mana is feeling good.

    There will be a review later this week to find out how everything is going; but for now we keep our fingers crossed and send lots more love and happy thoughts for the recovery of this wonderful mama!

    Today's pic is of the two mischief makers, on their way to chemo ... bless!

    You got this, Mana!! xoxo Alofa atu to all xoxo

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  • 20 Feb 17: Day three of round three ...

      20 February 2017
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    Day three of round three! It sounds a bit like a boxing match ... and I can tell you, our girl is in her corner, gloves on, and ready for it!

    Mana is continuing to do really well. Now that she is up to the end of round three, the chemo is taking it's toll on her by way of tiredness, and a bit of a reaction to the taxol. But that's something that some good loooong naps and a few antibiotics can take care of.

    Overall, Mana is doing extremely well and her doctors are really pleased!

    Again, we would like to thank those awesomely kind and generous people who continue to donate towards the medical treatments. Bless you all, and thank you from the bottom of our hearts.

    This pic of Mana was taken today. Fierce and beautiful!! xoxo

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  • Tue 07 Feb: Day one of cycle three infusion!

      7 February 2017
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    Malo lava to all!! Well, we're up to day one of the third chemo cycle today ... and Mana is having a chemo infusion as I write this.

    As you can see by the pic taken today, she is looking really extremely well, with Tai by her side :o)

    Mana is making such amazing progress, and even managed to travel back to Samoa over the last week for her visa to be sorted, so she can continue to be here in NZ for her treatments. It's great that she has been feeling so well, that she was able to travel.

    Thanks to everyone for your continued well wishes, prayers and support. Much alofa xoxo

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  • Infusion Day Today! 23 Jan 2017

      23 January 2017
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    Hi all!! Mana is in for an infusion today, part of the second cycle of chemo. She just sent me this pic, and I think she's looking amazing!!!! Beautiful ladies!!

    Blessings to all, much love to everyone who is sending good thoughts, love and prayers. xoxo

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  • Round 2 begins!! 16 Jan 2017

      16 January 2017
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    Hi everyone! A big hello from Mana as she begins her second round of chemo today. Looking awesome, Mana!!! Alofa atu to all xoxox

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  • The Next Infusion: 04 Jan 2016

      4 January 2017
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    Happy New Year to everyone! I hope you had a safe and joyous time with your family and loved ones.

    Mana has been surrounded by her gorgeous family all through Christmas and New Year, and has tolerated that first mammoth chemo session on the 28th December like the trooper that she is :o) She has been taking it very easy and resting up heaps, to make sure that she has the strength to continue on with it through this cycle.

    Today is another infusion - this time it's Taxol, which is part of the 'cycle one' cocktail prescribed by Rita, the oncologist. Taxol works by stopping the cancer cells from dividing and multiplying, and this blocks the growth of the cancer. Mana has had the infusion this morning and it was all done in an hour, and then she was off home again and back to bed to rest up :o)

    When talking with Mana this morning, she said she has managed to put on some weight in the two months she's been over here in NZ, and that she feels much better in that her body is giving her less aches and pains than before. This means she has the strength to cope with the ongoing treatment. Great news! Amazing what two months of TLC can do for a girl!

    The next infusion treatment is next Wednesday, and I'll be back to let you all know how it goes.

    Please do continue to share this page and to help raise funds for this treatment that is going so well, and really helping Mana to get on top of this insidious disease.

    Alofa atu to all xoxo

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    • 05/01/2017 by Bronwyn

      Keep going Mana! You're doing awesome!! ?

  • Chemo Day! 28 Dec 2016

      28 December 2016
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    Merry Christmas to all :o) Hope you have had a joyous and blessed time with your family and friends.

    Today is a huge day for Mana - the first BIG chemo dose. Sili (Mana's dad) has come across from Samoa and also Alan is here, and the girls, and of course Mana's mum Tai. Along with Via and her gorgeous family, Mana is surrounded with a lot of love and support for this day!!

    So at around midday today, Mana will be having a cocktail of taxol, herceptin and tranzumptam, which will take around four hours to infuse into her bloodstream. She now has a portacath, which is a little valve inserted under the skin on her chest, so that the drugs can go directly into her system. This is much more efficient and much kinder on her veins!

    After today, Mana will need a lot of rest and recuperation time, as the drug cocktail is a bit hard on the system. Luckily she has good doctors who will make sure she has all she needs to be comfortable afterwards. Plus of course she has the family to take good care of her!

    I'll write an update in a few days, letting you all know how Mana is and how the chemo went.

    Take care out there everyone, enjoy the break if you are not back to work yet, and please, do keep sharing our page so that we can continue to raise funds for Mana's ongoing treatments.

    Alofa atu to all xoxo

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  • Oncologist Visit today - Mon 19 Dec 2016

      19 December 2016
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    Hello all! Today was a huge day for Mana. It was the first big review with Rita, the lovely oncologist who has been taking very good care of Mana and overseeing her progress and chemotherapy drug regime.

    Rita was full of smiles after analysing all the bloodwork - she is amazed at the improvement that Mana has made, and has given the go ahead for Mana to have the full whack of chemo on 28 December! She feels that Mana can handle it, and that everything is going in the right direction, and she feels very positive about it.

    As you can imagine, the family are completely over the moon at this news - what a Christmas present! Additionally, Mana has been feeling really good and is able to get up and about a bit more than before. Awesome!

    This means that we now have to gather all our resources and keep sharing this page so that we can continue with our fund raising for future treatments. We are getting up around the $20k mark per chemotherapy cycle now ... so please please keep sharing the page for Mana, and please accept our heartfelt thanks for doing so!

    We wish everyone a joyous and safe Christmas with your loved ones. Stay safe! Alofa atu xoxo

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  • Progress Report: Doing Awesome!!! Mon 12 Dec 2016

      12 December 2016
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    Hi everyone ... not too many more sleeps til Christmas - hope you've all done your Christmas shopping!

    Mana had a review with her respiratory doctor today and he is really happy with her progress on the steroids. He will further review her lung progress after the first chemo, but so far he says it is a good sign that Mana's shortness of breath has improved to this point after just three weeks on steroids. At this point, the doc thinks most of her lung damage could have come from the radiotherapy and he is happy to keep the steroids going as they are obviously doing a lot of good.

    He also says that Mana is in no need of oxygen, and that her lungs are obviously repairing slowly, and at present she is in no immediate danger from breathing problems. This is just fantastic news, and a really positive update!!! We are all pretty stoked with that!!

    The next step is an assessment with the oncologist after she has had a chance to review the latest blood tests to see how Mana's immune system is faring in preparation for the BIG chemo, hopefully on 28 December.

    So it's been a big day, with lots of really positive news, and so Mana will sleep well tonight! Of course, that *could* be due to some sleeping tablets ... but regardless, it's fantastic to be able to share a very cheery update with you all!

    Alofa atu xoxo

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  • Happy Weekend!

      10 December 2016
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    We are kicking into the weekend with Mana having had a pretty restful week, which was much needed after Monday's Herceptin infusion. Even an antibody drug such as Herceptin takes its toll and has its challenges.

    With the help of some pretty hardcore drugs, Mana has had a pretty okay week, managing to get up for small walks and finding breathing a little easier with the assistance of some morphine.

    The next steps are a chest xray and some bloodwork, most likely happening today or Monday - depending on when there is an appointment available at Ascot. Then it's review time next week with the oncologist to see how Mana is tracking for a BIG dose of heavy duty drugs on 28 December.

    Yesterday was a big excitement, with Mepa's husband Max arriving from Denmark for an overnight in Auckland before heading to Samoa today. He had an amazing welcoming committee at the airport, made up of Mana's girls!

    Welcome to NZ Max, and wishing you a safe journey on to our Samoa xoxo

    Happy weekend everyone! Alofa atu xo

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  • First round of Herceptin = TICK

      6 December 2016
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    With the first round of Herceptin administered yesterday, Mana now has a couple of weeks to let that get into her system and get to work on those HER2+ cancer cells!

    Herceptin is an artificially created antibody that works to fight off cancer cells much like our naturally produced antibodies fight off germs. Herceptin is a targeted drug therapy that attacks a specific protein called the HER2 protein, which causes cancer cells to grow.

    Unlike traditional chemotherapy drugs, which often wind up attacking healthy cells along with the cancer cells, a targeted chemotherapy treatment like Herceptin targets the HER2 protein, within the cancer cells, while striving to leave healthy cells alone.

    So now we wait a bit and see how Mana responds, whilst the family take good care of her to minimise any possible infections, which can be a side effect to Herceptin due to low blood cell counts. She also needs to continue to rest up and get stronger for the treatments that are yet to come.

    Love to all! Tina xoxo

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  • The girls are here!

      4 December 2016
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    It's been a big week here in Auckland for Mana. Her appointment for the first round of Herceptin was confirmed, and it happens tomorrow, Monday 05 December. The main focus this week has been on resting and getting her strength up for the infusion tomorrow. This has meant having to say no to visitors, as it's too tiring and Mana is very breathless and finds it quite exhausting to talk. It's really important for her to have as much rest as possible and get her strength up so her body is at its very best and strongest to tolerate the drugs.

    Last night, Mana's girls arrived from Samoa which is awesome! The family have sent them over as Mana wants her children with her, which of course is totally understandable for any mum. Now that the school year is over, it's great timing for them to be over here with her.

    AND ... a HUGE thank you to everyone who has given so generously and to those who are currently fundraising for Mana's future treatments. We are truly grateful for all your help, your prayers and your support. Who would have thought we'd reach over $12,000 in a week! You are all amazing!

    Tina xoxo

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  • We are online ...

      29 November 2016
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    Our page is now live! Thank you to everyone who has today read our page and learned what Mana is dealing with.

    It's all pretty fresh and raw, with Mana having only just seen the oncologist yesterday for the most recent summary. However she knew something was going on, because Mana knows her body really well and it hadn't been feeling quite right for the last little while. So now the gloves are off and we are standing beside Mana to fight this!

    Thanks to everyone who has given today; every single dollar helps us to go that bit further, and to alleviate the financial worries. This leaves us more time and energy to focus on Mana's journey, and what she needs to grow stronger.

    Alofa atu to all

    Tina xo

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