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Help 7yr old samuel do his bucket list

Cause page created in the Health category by Angela Ward for "Samuel my terminally ill son"


$1,330 of $5,000 goal
Given by 27 generous donors in 7 weeks
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To help samuel do his bucket list why he is still able to!!!

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  Canterbury

Heartbreakingly 7yr old Samual was diagnosed at just 14 months with a terminal disease - duchenne muscular dystrophy. Duchenne’s is a progressive muscle wasting disease and sadly Samuel has an incredibly fast progression Duchenne’s. Most don’t go into wheelchairs until late teens, Samuel was 14 months!

6 months after diagnosis Samuel lost the ability to eat and drink & walking was hard.

By 2 years old he was tube fed, and gained his first power wheelchair. By 4 years old he was on a breathing machine every night.

In the last 4yrs we have tried steroids to help prolong Samuel's muscles but unfortunately it has not helped.

Reality for us it is each day is about making memories and family time. In the last 6mth samuel has declined so much that even holding his head up unaided is now hard for him what strength he does have left is such short bursts now!!!

Some of sam lists is:

Going on a train thru the mountains

Going on a ferris wheel

Going to see snow

Going to see dolphins etc

Samuel is also needing a cough assist machine, this is not funded and essential for lung health. He doesn’t have the strength in his muscles to cough well enough independently.

Doctors have said there is nothing else they can offer to help with the slowing of the progressive of his condition. We need to make memories while our gorgeous boy is still with us.

Thank you for reading this far and for supporting us on this journey we never imagined we’d be on.

Please appreciate how hard it is asking for financial help, it is not easy xx

Angela Ward's involvement (page creator)

I'm his mother and I will do all possible to make sure his bucket list gets some ticks on it

Use of funds

All funds will be used to tick off samuel bucket list why he still can!!!

Ferris wheel, Train thru mountains, Go see snow, go see dolphins etc....


Latest update

Alpine train  5 August 2020

Posted by: Angela Ward

To be able to do the trans rail alpine trip in spring its gonna cost us quite abit for a return trip for the family to go on this trip

Read 2 more updates  |  Share this update


Latest donations

Jennifer
Jennifer 3 days ago
$10
Guest Donor
Guest Donor on 14 Jul 2020
Private
Guest Donor
Guest Donor on 12 Jul 2020
Private
Guest Donor
Guest Donor on 11 Jul 2020
You're an amazing mum, Angela. I have a special needs son and he doesn't have a fraction of the health problems your little guy has. Best of luck. 💞💕💞
$10
Guest Donor
Guest Donor on 11 Jul 2020
Best wishes Samuel and mum🌹🌹🌹
$5

Who's involved?

Angela Ward's avatar
Created by, and paying to a verified bank account of, Angela Ward on behalf of Samuel my terminally ill son

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This page was created on 13 Jun 2020 and closes on 30 Sep 2020.
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