You're all awesome
25 February 2019Hi everyone!
I thought I better not procrastinate any longer and give you all a quick update. So much has happened the last few months – the fundraising here, treatment on Kadcyla is on cycle 5 already and we’ve even had some private donations which have been amazing. But the most amazing thing so far has been my response to Kadcycla – a significant reduction in my brain disease!
It’s not often you read those two words in a medical report but I’m ecstatic with the result. It was a bit surreal when I found out. Hopefully, future cycles will continue to work their magic by reducing my brain disease even more and keeping it at bay.
I’m also feeling great – my walking is pretty much normal, energy levels are good and everyday life is back to normal. So normal in fact I’m on the hunt for work! I’m a little conflicted about that…my Netflix and You Tube viewing time will have a sharp decline
But thank you to all of you who donated, who got in contact, sent kind words and showed you cared. It’s made a ‘significant’ and positive difference to my life.
Alyssa
XOXO