Help change Jai's life
Unfunded medication Jais new hope to learning and developmentWaikato
Jai is a 2 year old boy who contracted Herpes Simplex Virus (HSV) at 9 months old. This was devasting to Jai's brain. While fighting this virus he developed a secondary infection encephalitis. After fighting off the initial virus HSV and secondary infection and spending 5 weeks at Starship Hospital Jai returned home.
Jai now has a significant brain injury and develpmental delays, resulting in him now having retractable epilepsy. After just over a year of trying the 9 funded anti epileptic medications none have stopped Jai's seizures. He is now on a Medicinal CBD trial (tilray) through his neurologist at starship. The cost of this per month is $1380. The government is not going to fund this medication.
Before trialling this medication Jai was having up to 7 seizures in a 24 hour period. Since starting this trial we have had seizure free days, and now his seizures average 2-3 per 24 hours. He is able to concentrate and slow down his movements resulting in more time to learn and engage with people around him. This is a life changing medication he cannot live without.
With the addition of this medication into his life he now has a chance, to develop and grow.
Due to his high sensory needs and delayed development we would love the opportunty to get him to an intensive therapy course only offered in Boulder, Colorado, US, in June 2018.
This is the prime time for brain development and to change/create new pathways in his brain.
He really needs your help for both this medication and also to get him to the states.
Jaimie Bowers Anstis' involvement (page creator)
our son to help cover costs of an unfunded medication
Use of funds
We need to pay for Jais CBD medication this is $690 a fortnight and get him to the United States for intensive therapy
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This page was created on 26 Feb 2018 and closed on 29 Apr 2018.