Help for Ibrutinib. life saving cancer medication which is not funded by Pharmac.
For the purchase of Ibrutinib, life saving cancer medication.Nelson / Tasman
Hello my name is Craig.
Unfortunately I have Mantel cell lymphoma a blood cancer and was given to 2 weeks to live in April. My Hematologist put me on a drug which is not funded by Pharmac and my death is not a special circumstance to apply. I am unable to have anymore chemo or stem cell transplant as my body regected my last dose in November 2018 and almost killed me with a trip to ICU and infections and the threat of a breathing tube. So this is my last chance of more time.
So I but a generic form of the drug from another country. The cost of the drug is $300 a week and unfortunately i cannot afford to purchase anymore. I am unable to work and the help I get from the e government is minimal after living costs.
After not dying my GP called me a miracle and I would like to keep that going, as I will be my own statistic and write my own book.
I did want want to do this as being a proud Kiwi always meant we could do it ourselves, but I can't unfortunately.
I Thankful and Grateful for any help I receive.
Use of funds
Ibrutinib. Life saving cancer medication
Overwhelming act of generosity! 17 December 2019
I haven't made a post in awhile as I've been trying to come to terms with the last few weeks. I would to thank Bevan and Tracey Muollo and their 2 kids Maddison and Ethan. Who's act of amazing generosity has changed my life for the rest of my days. Their selfless act was done out of sacrafice and no expections of anything in return of a much loved boat, which in a crazy set of circumstances made its way back to the Muollo family, in which I am very happy about.
The response from such an amazing act went national in know time and the response on my givealittle was overwhelming.
I would like to thank everyone who donated it has relieved an enormous amount of pressure.
I would also like to thank the businesses that took part.
So a special thank you Bevan, Tracey, Maddie, Ethan
You've changed my life and I will life it for you and everyone to your wishes.
Which was Full Noise Enjoyment!!
Love to you all
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This page was created on 25 Oct 2019 and closed on 25 Oct 2020.