Help get Alfie to the NAPA clinic

$20,705 donated

Given by 462 generous donors in around 6 months

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Fundraising to help get Alfie to a physical therapy intensive in Sydney, October 2023

Canterbury

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At 5 months old, Alfie was diagnosed with infantile spasms, a serious type of seizure. This lead to on-going treatment & testing, which found a very rare genetic neurodevelopment disorder - FOXG1.

FOXG1 is one of the first & most important genes for early brain development. When impaired, it causes cognitive & physical disabilities & medical complexities.

Alfie has daily seizures, is nonverbal, non-ambulatory, needs a feeding tube for nutrition & medication and is developmentally delayed.

Alfie requires 24/7 care & is 100% dependent on others, especially mum, Lu, who is unable to work due to the level of care Alfie requires.

It’s been a hard journey, including countless hospital stays, specialist appointments, weekly therapies & practicing skills at home daily.

Despite this, Alfie is an absolute delight & brings so much joy - those who know him love his big goofy grin, infectious laughter & blowing raspberries.

Alfie has a life changing opportunity to attend a therapy program in Sydney called NAPA.

He will attend 5 days a week for 3 weeks working toward goals to improve his quality of life including independent eating, communication, crawling, & pulling himself up to sit, stand, & walk!

However, this great opportunity comes with a heavy price tag. On top of the cost of the therapy program, there is accommodation, food, transportation, etc. Please join us in supporting this amazing family.

To learn more about NAPA: www.napacentre.com.au

and FOXG1: https://foxg1research.org

Use of funds

Money will be used to find getting Alfie to the NAPA clinic in Sydney for a 3 week intensive.

If we're unable to go or not enough is raised, then funds will either be donated to The Champion Centre or kept in Alfie's account for future needs around his medical care.

Latest update

Thank you all so much! 15 June 2023

Wow - I just want to say a massive thank you for everyone's support. Reading and sharing our story, all the kind words, and the donations. It all means so much and I'm so grateful to every single person.

We have now reached our goal (in less than 48 hours!) and I have been asked by a few people not to close the GAL, but to keep it as an open goal now, for those that still want to give in the coming months

All additional money raised will be put towards a potential second NAPA visit, or used for future expenses for Alfie.

We are booked into NAPA in October, so If you would like to follow our journey, you can find us on Instagram at @lu.and.alfie

Again, thank you so much for turning this dream into a reality, we couldn't of done this without you all.

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