Help Get Lucas and his Family to the Stickler conference in USA
Larnell asks
Hi Michelle it was so awesome reading your story. I have two boys age 3 and 5 both with sticklers syndrome. We are still currently going through with genetics. I can absolutely relate to what you have been through and what you are still going through with your son. my youngest just came home from star ship and they both go back for surgery next week. Exciting to know that you will be going over seas i wish yous all the best over there and feel free to contact me :)
Michelle
Hi Larnell
Thank you so much for getting in touch. The page was set up for my Brother and Sister inlaw and they have been completely overwhelmed with the support. Can I please pass on your details to them, I know that they are very keen to have some contact and support with others going through similar experiences.
I wish you and your boys all the best for their upcoming surgeries and ongoing treatments in the future. x
If you can email me your contact details I will pass them on to Sonia
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