Back to page

Help Jacob fight.

  • The road to recovery

      31 January 2019
    Main image

    First off I would like to apologize for the lack of updates, so Jacob had his bone marrow transplant, it went reasonably well not with out a few infections, nausea, mental battles fluid retention,weight loss, NG tube (feeding tube) issues, a little internal bleeding, and graft verse host disease of the skin, believe it or not this is pretty smooth considering some of the other things that could of happen.

    once Jacob was well enough and his body was tolerating all the medication we were sent to ronald mcdonald house for a few months, with check ups a couple of times a week at starship.

    When Jacobs graft verse host eased a bit we where sent home, and every second week back at Auckland.

    At this present day, Jacob has a full head of hair, has gained a lot of weight, is happy and loving home and being with his dogs and family he is on no medication apart from steroid creams, and last week we got the news that there is NO detectable cancer cells, SO OUR NEW JOURNEY BEGINS.

    Jacob is excited to start transitioning back to college, we still have check up appointments each month, and a long road of recovery as Jacob had to have so many chemo treatments and radiation that there is delayed side effects due to this, but he has totally got this, He has punched this cancer in the face like a boss. just want to take his time to say thank you to all of the support, love, prayers that everyone has given to our family.

    lots of love from myself my kids and the amazing superhero Jacob

      0 comments  |  Login to leave a comment

  • Bone marrow transplant

      24 July 2018

    Today our brave little Krystal is giving her big brother her bone marrow. Krystal has been super excited to do this. They have just gone down to theatre now. So our next journey begins today. This is even harder than before we have been told so quite nervous about everything. Prayers and support definitely needed at this titem. Thank you to everyone who is still following Jacobs journey fighting Peripheral T Cell Lymphoma NOS. Blessing to you and your loved ones.

      0 comments  |  Login to leave a comment

  • We get to go home for a few days

      11 July 2018
    Main image

    After spending 3 months solid in starship Jacob is tube free for the first time in what feels like forever and we get to go home. Soooooo excited to see his beautiful dogs and the whanau!! Jacob has donever a complete turn around from being so incredibly sick to now going home just before the bone marrow transplant. That happens from 17 onwards. Another battle to go and a big one but for now VICTORY! !!.

    See you tomorrow Mangatinoka

      0 comments  |  Login to leave a comment

  • Small window

      29 June 2018
    Main image

    Hi fundraiser whanau and followers of Jacob.

    So it has been one infection after another. Jacob had to have his Hickman line removed urgently due to a bacteria infection that attaches itself to plastic. Then we had a whole 36 hours without a temperature and then....yep another bloody infection was found in the new pic line. So he has been put on more antibiotics. Currently about 3 types of antibiotics at this time going through him. He has just started a good supplement through a nasal tube feed which he is now tolerating. So that was a win. He has gone from having 5 machines hooked into him to two. Jacob is busting to get out of this room and today we managed that for about a half an hour whilst we had a CT scan. Not the outing we were hoping for but bit got him out of the room he has been in for over two months straight due to all the infections. We are looking forward to getting well enough for Jacob to have his marrow transplant which is on hold until he is well enough. Thank you for your support and prayers. We appreciate it.

    Also a huge thank you to Trish Barnes for her generous gifting of a totally amazing

    Cake that is a work of art done by Cake Artistry by Shayna

      0 comments  |  Login to leave a comment

  • We need a win

      18 June 2018

    Doctors are scratching their heads trying to figure out how to manage all of the complications of Jacobs illness. Rarest cancer in the world and he is the only 15 year old to have it in the world!!!so no easy answers to start with. 4kg of fluid retention in places it shouldnt be + Temps rising dangerously high above 38 degrees daily + Infection in his Hickman line+high blood pressure + zero immunity + low platelets + low hemoglobin + ecoli infection in bowel +feeding tube which increases heart rate when used + dehydration. I do not envy the doctors at all. They have their work cut out for them. And Jacob is fighting incredibly hard just to keep positive and keep healthy. Jacob needs prayers. Jacob needs your support.

      0 comments  |  Login to leave a comment

  • This is rough.

      16 June 2018

    Hi supporters of our awesome Jacob.

    Sorry for no updates lately but things haven't been going that great. So on top of HLH..(when your body attacks your own cells, tissue and organs.) Jacob our mighty warrior has also had an infection in his stomach from having some many antibiotics and an infection in his Hickman line ..he is bruised up from all his battles and healing is very slow. Jacob has had biopsies done on the lumps and they have concluded that it is the cancer growing back. We were going to try two new drugs from the states but his cells reacted so he was not compatible for that treatment. He has just started a new chemo treatment in the hope that it will break done theT Cell lymphoma. No guarantees but we're are praying and full of HOPE!!. Weight loss and fluid retention along with Temps reaching 40. 7degrees. It has been a roller coaster for Jacob and his Superwoman Mum Janet. Whanau comes up every two weeks to relieve and we still desperately need support through this time to keep everything as stress free for Jacobs Mum and whanau. Keep fighting Jacob. We are with you every step. You are truely one of a kind you beautiful young man. And HAPPY BIRTHDAY. Jacob turned 15 on 12th June. He had chemo on that day so was very tired. Please pray and pray and pray some more.

    Thank you supporters it means so much

    ❤💙💚💛💜

      0 comments  |  Login to leave a comment

  • Hard road ahead

      21 May 2018
    Main image

    Jacob is very unwell. He has fevers reaching over 40 degrees daily. With many things happening that doctors can't explain. Our little man still fights on. He is tired but still smiles. Jacob you are truly amazing. We love you Jacob

      0 comments  |  Login to leave a comment

  • bone marrow transplant

      4 May 2018

    So Jacob his brother Tyler and his sister Krystal are all up in Auckland with mum currently waiting on the bone marrow matching results. The doctors have had to change the bone marrow transplant from Jacob having his own bone marrow back to a donor, hopefully one of his siblings, due to the cancer in Jacobs blood still being very high. Jacob is enjoying having his family together and being able to spending time with his siblings, Fingers crossed one of his siblings or mum are a match.

      0 comments  |  Login to leave a comment

  • Costs

      21 March 2018

    Today has been an eye opener of how much it costs to be away from family looking after a sick child. Groceries up here in starship as well as nutritional support as Jacob has lost a large amount of weight. Over 20 kilos. The fortisip prescribed costs just over a dollar per bottle. Taxis to help get Jacob from house to hospital and back on a daily basis. Food for Mum at hospital. And of course an entire additional house of rent power food bus fares for the other kids and care while Mum is away from home.

    And of course Jacob has things he needs and desires like every child.

    I don't know how it is possible to do this without the support given by the incredible people helping my sister and Jacob. Thank you and please continue your support. It matters so much.

    Thank you.

      0 comments  |  Login to leave a comment

  • Tired soldier

      21 March 2018
    Main image

    Chemo cycle 5 starting now. Stem cell harvesting went well yesterday . C.T scan and blood transfusion today. Lumen line removed from femur artery. Tired soldier. This is just another day for Jacob. Thank you for your support. It is needed. It is appreciated.

      0 comments  |  Login to leave a comment

  • Harvest time

      20 March 2018

    Jacob is getting a second line in his femur artery today. We are doing the Harvest for stem cells today. YAYA

    Jacob will be feeling awful as they have had to put him to sleep and it makes him very sick.

    He hasn't been able to eat a lot and is losing quite a bit of weight.

    But that has not dampened his beautiful attitude.

      0 comments  |  Login to leave a comment

  • Stem cell harvest

      19 March 2018
    Main image

    So today we went to the hospital at 7 am. Just got released after a long day. Jacobs Hickman line cannot be used for stem cell harvesting so we have surgery tomorrow to put a new more usable line in him femur artery to do Harvest tomorrow. Long day lots of blood stuff.

      0 comments  |  Login to leave a comment

  • Jacob's in the news🙋❤💙💚💛👍

      14 March 2018

    Hello to everyone single beautiful person helping and praying and just being amazing. Firstly thank you for all of your support. It has made a huge difference. The reason why I created this give a little page is to help support Jacobs needs in every way. In case you are not aware Jacob has a story in the nz herald which sheds some light on his diagnosis and gives everyone a little glimpse of how incredibly awesome our little soldier is.

    Enjoy seeing our special little man.

    http://www.nzherald.co.nz/lifestyle/news/article.cfm?c_id=6&objectid=12008452

      0 comments  |  Login to leave a comment

  • Jacobs full Diagnosis and staging.

      2 March 2018

    Chemo 3 went well,Jacob is a champ.

    So i thought i would clarify Jacobs diagnosis, for those people who have been supporting Jacob and just wandering about him. Jacob has been diagnosed with Peripheral T-cell Lymphoma, NOS (not otherwise specified) This is at Stage 4 which means it is in his bone marrow, and threw some of his vital organs, and the majority of his body.

    They have changed the chemo plan, so that chemo is 9 days apart. After Chemo round 4 happens he will be having a stem cell harvest.

    After chemo round 6, then they will give back jacobs stem cells to him (stem cell transplant) Once he has recovered from this then we move onto test, scans, MRI, etc to see how the cancer has been reacting, and from there they will decide the next step dependent on the results.

    All through this Jacob has a smile for everyone he meets, he is an amazing young man with a positive attitude who deserves the world and them some.

    Thank you to all the support from everyone. much love. xoxoxo

      0 comments  |  Login to leave a comment

  • Thank you to everyone

      9 February 2018

    Just wanted to say a big THANK YOU to everyone who has been donating to Jacobs cause and helping him in his fight. Thank you to the Pahiatua Community for supporting our family. To all the kids who have given Jacob so much love. It is outstanding just like Jacob. 👍👍

      0 comments  |  Login to leave a comment

  • Round 2 Chemo

      7 February 2018

    Jacob started his 2nd lot of chemo today. He had a major reaction to the Etoposide. Swelling and finding it hard to breathe and going blue. Not what any parent wants to see. Thankfully Starship are onto it and got things sorted with doctors leaping into action and his chemo plan being reviewed.

    After a week of no chemo his lumps started growing again. This is relentless. You are amazing Jacob and so is your Mum!!! 💙❤💖💜💛💚👏love you

      0 comments  |  Login to leave a comment

  • Thank you

      26 January 2018

    Thank you to everyone who has shared Jacobs cause and thank you to everyone who has donated.

    Jacob was able to travel back home today and will go back to Auckland for more chemo. Jacob was able to see his dog and brother and sister before having to be readmitted to hospital. No one can come in contact with Jacob if they are sick or if they have been sick recently.

    At least he is a little bit closer to home for now.

    Please keep up the support.

    Prayers and all.

      0 comments  |  Login to leave a comment

  • 😢😴😴😷

      20 January 2018

    Jacob is so over feeling sick and dizzy.

    Our soldier is tired and missing home. Please send some love his way. TO'Day he is wiped out. Letters and cards are all appreciated.

    Keep sharing and promoting his givealittle page.

    ArohanuI. 😚

      0 comments  |  Login to leave a comment

  • Thank you

      19 January 2018

    Just wanted to take some time to say THANK YOU. THANK YOU TO EVERYONE HELPING JACOB FIGHT.

    It's a rough road ahead but it is great to know some truely generous and beautiful people are supporting Jacob and his family.❤💙💚💛💜👌👏👏👏

      0 comments  |  Login to leave a comment

  • 😢rough day

      19 January 2018
    Main image

    Jacob is home sick. He misses his brother and sister. He misses his enormous dog who is one of his best friends. A sad day for Jacob today.

    We left last night to go back to Wellington so naughty Aunty was not there and his cuzzy Xman was not there as well to cheer him up. It's rough when whanau have to go. Wish we could stay my darling. See you next Saturday.

    And what an amazing drawing of Auckland city. Love you.

      0 comments  |  Login to leave a comment

  • The Sky tower.

      19 January 2018
    Main image

    So Jacob hado been asking for the sky tower to be red.

    As those of you who know me I would do anything to make his wishes come true. So I emailed and called them enough timeso to get a restraining order.LOL. no regrets. Unfortunately after day 3 of harassment I received a response saying that they only light up the tower for charity events. But being great sports they have given Jacob the opportunity to go and visit the sky tower ( free family passes whoopwhoop). But I couldn't disappointell my little soldier so this was my version of making the tower red.

    He woke up and smiled!!.

      0 comments  |  Login to leave a comment

  • And so it begins

      18 January 2018

    Jacob started his chemo.

    Our brave little man is being knocked the hell out of.

    They gave him at least 5 doses of chemo last night.

    Etoposide. Vincristine.Cyclophosphamide.Doxorubicin.

    Anti nausea meds just been given in higher dosage.

    Getting a chemo plan today.

      0 comments  |  Login to leave a comment

  • And so it begins

      18 January 2018

    Jacob started his chemo.

    Our brave little man is being knocked the hell out of.

    They gave him at least 5 doses of chemo last night.

    Etoposide. Vincristine.Cyclophosphamide.Doxorubicin.

    Anti nausea meds just been given in higher dosage.

    Getting a chemo plan today.

      0 comments  |  Login to leave a comment

  • Going into theatre

      17 January 2018

    It's 11:25 am Wednesday 17/01/2018 and Jacob has just been wheeled into theatre. See you when you wake up Jacob.

      0 comments  |  Login to leave a comment

  • Photos.

      16 January 2018

    Hi beautiful people.

    To explain the photos.

    The photo of Jacob with a drastically smaller face was taken in the beginning of Dec 2017. The lump was only just not quite 4cm.and a doctor said it was probably a cyst.Antibiotics given and that's where his journey began.

    Misdiagnosed lump leading to starship hospital.

    Jacob being his happy beautiful self with his cousin Xzavier. Xzavier and Jacob are close and he knows just how to cheer Jacob up.Nothing like family at dark times.Thank you all again for your support.

      0 comments  |  Login to leave a comment

  • Diagnosis so far

      16 January 2018

    Hi Everyone. So we got 90%of the official diagnosis today. We knew by the rapid growth rate that it was a Lymphoma but now find out that Jacob has got a rare type of Lymphoma called Peripheral T Cell Lymphoma NOS. The doctors have never seen a case in a young person as it usually effects 50-6O yr Olds. We start the medication tomorrow hopefully after a few surgical procedures like a lumber puncture to name but 1. Thank you for your support at a devastating time. Please continue to show support for Jacob as he Braves through this. Share and donate.

      0 comments  |  Login to leave a comment