Keep on Keeping On 23 April 2020
Time on our hands, time for an update. All is going well, I am still alive, thank you everybody.... I am still aiming for 20 years ! 😊
So….It came as a complete surprise to Kelly and I that, although we were told on first consultation with our private oncologist the primary drugs for Bowel Cancer (FOLFIRI) were "Government Funded", in fact they are not in all circumstances completely Govt. Funded, in that if you are under private care (which I am in order to receive the Avastin), that the "Govt. Funded" drugs actually have to be paid for by you or your insurer. Yesterday we found out that because of this, my private insurance cover has maxed out (which we did not expect), and that I will have to pay far more costs than originally expected to continue with the Chemotherapy that seems to be working so well!. There is a solution that I can get the FOLFIRI from a DHB Hospital, but they cannot administer the Avastin, so I have to get my running shoes on and run between two hospitals! The Avastin has been almost covered, but because I have already paid out for the Government Funded drugs, there are still more costs mounting up. It is quite daunting to think this is going to go on for 10 or more years. The last thing I ever want to do was leave my daughter with a debt after my death.
The donations we have received so far are incredibly generous, particularly right now in the circumstances of COVID-19, where a lot of you will be financially suffering from job losses or downturn of business. We will be looking to raise funds on an ongoing basis and appreciate each and every one of you, so sorry if we don’t get completely on to of it and thank you personally.
Thank you thank you thank you. Stay well, stay safe. See you out and about soon, I hope!