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Help Lilith Fight Stage 4 Wilms Tumour at just 3 years of age

  • A wee update on our warrior, Lilith 💜

      5 October 2025
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    Lilith’s latest CT results show no new growth! If the next scan at the beginning of November shows the same, we’ll begin exploring surgery to remove anything that’s safely operable — and start talking about the road to remission.

    She had her last round of chemotherapy at the start of September, and now, just over a month later, her hair, eyebrows, and eyelashes are already starting to grow back 😍💜

    Lilith’s not completely out of the woods yet, but we’re finally seeing the light at the end of the tunnel.

    We’ll never be able to thank everyone enough who has supported us — and continues to stand with us. We are forever grateful 💜

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  • Update on the past 3 months

      23 July 2025
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    It’s been a while since Lilith’s last update but since then she been through:

    • 1 X-ray

    • 2 CT scans

    • 4 rounds of chemo

    • 14 days of radiation treatment

    • 2 surgeries

    • Multiple blood + platelet infusions

    • 3 new NG tubes reinserted

    • 4 nights admitted to hospital

    • Countless blood tests

    Radiation treatment was incredibly tough on Lilith’s body, but in true Lilith fashion, she showed up day after day with a smile on her face and proved the doctors wrong yet again - showing just how strong and resilient she really is!

    The last scan results have shown very little improvement within Lilith’s lungs, despite previous scans showing positive results. This means after finishing the next 20+ weeks of this course of chemotherapy Lilith will have more scans and another biopsy to do further genetic testing, in hopes to find the most effective treatment.

    Lilith’s courage beads are now sitting at an incredible 655, with a visit from Gabi coming up soon to collect even more. She pulled at plenty of heartstrings during her appearance on Seven Sharp - proudly showing off her beads, her beloved Fluffy, and just how truly amazing she is! ❤️

    Lilith also celebrated her 4th birthday at the end of June with a “tree party with animals” - exactly as she requested. She had the absolute best day having a dance-party, getting her face painted and sharing cake with everyone who could make it, including her two best friends from pre school💜

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  • Crusaders Visit to CHOCC

      7 April 2025
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    Lilith had a pretty special day when the Crusaders team stopped by to see her before they headed off to Fiji. In her usual thoughtful way, she gifted a few of the boys some of her little dinosaur drawings - and not gonna lie, there were definitely a few teary eyes among those tough guys. One of them even said he was taking his gift with him overseas.

    We’ll have a more detailed update in the next week or so - this week has mostly been about investigations, so there’s not a whole lot to report just yet.

    Massive thanks again for all the love and support. It’s made life so much easier and less stressful for both Grace and Lilith. They’re incredibly grateful - so thank you!

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  • Update on Lilith - 16/03/25

      16 March 2025
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    Lilith has now reached an incredible 320 beads for her Beads of Courage - a testament to her strength, bravery, and the journey she’s on. Each bead tells a story, and every single one is a reminder of just how incredible she is.

    As long as her cell count is back at the right level, Lilith will begin another 21-day cycle of chemo this week. After this round, she’ll have a C.T. scan to see how her body is responding to this treatment and what her radiation journey will entail. We will be meeting more frequently with the radiation team after this C.T. scan

    On a sweeter note, Lilith has made a special little friend - they’re the same age and connected instantly. Watching their bond grow has been a beautiful silver lining in all of this.

    A huge thank you to Sheffield Pie Shop, Kerry, and our wonderful community for your constant love and support. Your kindness lifts us up more than we can ever express!

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  • Update on Lilith’s Battle

      1 February 2025
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    Hey everyone,

    Things have gotten a bit more complicated, and we’ve had to adjust Lilith’s medication and course of action. But through it all, we’re staying positive—because if there’s one thing we know for sure, it’s that Lilith is an absolute warrior! 💪

    Your support means the world to us, and we’re so grateful for all the love, kind words, and generosity. We’ll keep you updated as we navigate this journey, but for now, just know that Lilith is fighting strong, and we’re right there with her every step of the way.

    Thank you for being part of this with us! ❤️

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  • Updates on Lilith over the past month

      29 December 2024
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    Hi everyone,

    It’s been a full-on month, so we wanted to give you a little update on how Lilith has been doing. Here’s a snippet of what’s been happening 💔

    • She’s now completed 11 rounds of chemo.

    • Her Beads of Courage necklace is at 97 beads so far, with 8 more to add in the next week.

    • She’s had 2 rounds of blood infusions.

    • A CT scan, with another one scheduled in next week.

    • She’s had a tough time with her feeding tube, vomiting it up twice in just three days.

    • We spent some of Christmas Day at the hospital.

    • She’s now lost most of her hair, but in true Lilith style, nothing seems to phase her. She is the toughest little cookie out there.

    Your support has been incredible and has truly touched both Grace and Lilith beyond measure. They are forever grateful to each and every one of you.

    Thank you so much for being part of this journey with us.

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