Help Millie fight Ehlers Danlos syndrome and its life threatening complications

After the initial disappointment of not getting to the US due to Covid we took the positives from it. We managed to get a telemedicine consultation with Dr Schofield due to regulations becoming more relaxed. She referred us to Dr Richard Hsu, a MALS (median arcuate ligament syndrome specialist) in Connecticut. Millie has the anatomy and symptoms for this and it is prevalent in those with hyper mobile EDS. We are presently trying to get further MALS testing done via NZ gastroenterologist Chris Cederwall. Chris is also trying to resolve Millie’s malnutrition and complex pain. We are also getting opinions from NZ and Australian MALS specialists.