Help Olivia eat again ... please help us fund for life saving medical treatment not available in NZ
Please give Olivia her life back.
Dunedin, Otago
Hi, my name is Olivia Adie, I am 17 years old and from Dunedin. I have been diagnosed with multiple chronic illnesses including; Complex Regional Pain Syndrome (CRPS), Functional Neurological disorder (FND),hypermoblile elhers danlos syndrome (hEDS), and Abdominal Vascular Compression Syndromes (AVCS). This has been a 7-year journey with doctors unable to diagnose my condition until now. This has resulted in many failed treatments, testing, and medications that have provided little to no relief.
Due to the AVC's, I have lost my ability to eat among other symptoms which has caused me to decline to the point where I have lost weight and now live malnourished and dehydrated due to lack of nutrition whilst relying upon my feeding tube.
Treatment for AVC is NOT available in New Zealand. My vascular surgeon has recommended multiple specialists in Germany who work together to perform life-saving surgery to release these compressions which would give me back my quality of life back.
Hypermobility (potential heds) has an impact on all the connective tissue in your body, affecting joints, tissue fragility, and hypermobility. This is what has caused me to suffer from AVC's, causing tummy pain, vomiting, and nausea among many other symptoms leaving me unable to eat or drink.
I want my full life back but more importantly, I want a life at all.
Any donation will bring me one step closer to getting to live my 'normal teenage' life, thank you!
Olivia Adie's involvement (page creator)
Being paid to mother who is funding this medical expense
Use of funds
All money will be used to help fund the trip to Germany and associated costs surrounding testing and surgery.
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Latest update
6 MONTHS POST OP 🫶🏻❤️🎉 5 April 2024
On the 29th of March I turned 6 months & I cannot even describe how incredible it was celebrate the way I did. I went to Easter Camp, on the anniversary of my surgery I went to adrenaline forest. A confidence course, harnessed in 25m above ground walking over obstacles and zip lining. I only lasted less than an hour but it an incredible celebration of my life 2.0. Even though I was plagued with nausea, vomiting, pain & so many other symptoms over the weekend this would have been IMPOSSIBLE 6 months ago in fact it would have been impossible 2 weeks ago pre picc line. I was able to get adequate hydration and decent nutrition over the weekend which meant that I could go even though I spent so much time sleeping. The best part of it all was that I was able to celebrate 6 months with Taylor!This was a full circle moment from finding out about AVCS, to staying with her family over summer and being soooo unwell to going to a camp with her. While I am still SOOOO unwell & by no means 100% better, I am well and truly 100% better than I was 6 months ago and even 2 weeks ago.
Medical devices while they have some huge issues are all steps towards life while we wait hoping my stomach will recover and my body will start to function better. we also know that if this is as good as it gets once I’ve got surgical tube options surgery will still be 100% worth it.
Life is so worth fighting for & their hope + joy right around the corner of even some of the most hopeless feeling situations.
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